World Ostomy Day 2025

Replies

Views

592

Lilmesican

Oct 02, 2025 4:37 pm

Cultural Influences on Ostomy Life

The sign-up link is: https://www.ostomy.org/ostomy-academy/

2 likes

GoinWithTheFlow

Oct 02, 2025 4:54 pm

Thanks for this! I just registered and see many interesting subjects available from past UOAA presentations! Very helpful!

1 likes

MeetAnOstoMate.org

MeetAnOstoMate is a remarkable community of 41,407 members.

“I mostly read and still feel like I belong.”

“Doctors took notes; they want others to find this website.”

“From midnight blowouts to big wins, there’s always a hand to hold.”

Join Free

Posted by: ejbetty

Geekyjen,

Thanks for the reply. I will be seeing my doctor on Friday and mention Entyvio. I did not remain paralyzed for more than 2 days, but it was terrible and I was so scared. The doctors just used alot of xanax and other drugs like that to UN paralyze my joints that were being attacked by the remicade. Turns out I have been diagnosed with LUPUS. It is attacking my nervous system. I had ulcerative colitis in 1996 and they had to remove my colon. Had a J pouch for 10 years, until it started failing. I then got a permanent iliosomy, and I suffer from severe chronic diareha, and I dehydrate frequently. I recently had a proctectomy, and that is when the new autoimmune disorder, Lupus, appeared. I have had two hospital stays now because of the blisters and the paralyzing incident. I will be dealing with this forever now. I have just been working on acceptance.

I love this website because of wonderful people like you!

Betty

SusanT

Oct 02, 2025 6:08 pm

I wish work wasn't kicking my butt right now so I could attend.

1 likes