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Dec 04, 2023

Seeking Advice on Colostomy Reversal Recovery and Experiences

This topic is about a 76-year-old person who is considering a colostomy reversal after having surgery for diverticulosis and developing a large parastomal hernia. They are active and live alone, and they are curious about what recovery from such a reversal might be like. They are seeking advice and personal experiences to help make an informed decision.

Here are some insights and advice shared by others:

1. Recovery experiences can vary widely:
- One person shared that even after more than ten years post-reversal, they still experience loose stools and need to plan outings around bathroom access. They are considering further treatment options.
- Another person felt back to normal within a month, attributing their quick recovery to having most of their rectum and colon intact.
- Some found robotic reversal surgery to be easier than the original surgery.

2. Temporary bowel issues are common after reversal:
- You might experience frequent or loose stools, or even constipation. Some have used Miralax successfully for constipation. It can take up to three months for bowel habits to stabilize.

3. Assistance will likely be needed immediately after surgery:
- Help with daily tasks like cooking and cleaning is often necessary during the initial recovery period.

4. Surgical techniques can differ:
- Some surgeons close the stoma site with staples, which can cause burning or itching, relieved by an ice pack. Others leave the site open to heal naturally.

5. Better outcomes are often reported when the rectum and a significant length of the colon remain intact.

6. Living with a hernia:
- Large parastomal hernias can make surgery longer and more complex. Some surgeons suggest relocating the stoma if repaired.

7. For those who choose to keep their ostomy:
- Flushable pouch liners can make colostomy management simpler and cleaner, though they are not suitable for septic systems.

8. Emotional support is important:
- Many people scheduled for reversals encourage each other to share updates and acknowledge the challenges of waiting due to COVID-related delays.

After considering the feedback, the person decided against both the reversal and hernia repair, as they are not experiencing pain or leakage. They find that flushable pouch liners make managing their colostomy straightforward and mess-free. Their surgeon will continue to monitor their condition yearly and can provide expedited care if needed.
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