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Jan 04, 2024

Considering an Ileostomy - Seeking Advice

This topic is about someone considering an ileostomy due to repeated bowel blockages and severe pain caused by adhesions from previous surgeries. The surgeon has suggested an ileostomy because re-attaching the bowel might not be possible. The person is seeking advice on whether to proceed with this option.

Here are some helpful insights and advice:

1. Decision-making
- Ultimately, the decision is personal and should be made by weighing the risks and benefits carefully.
- Create a detailed list of pros and cons and discuss it with medical professionals. Consider getting a second opinion from a different hospital.
- Ensure you have all the information needed for "informed consent," including any aspects that have not yet been discussed.

2. Medical consultation
- Ask the surgeon if an ileostomy will truly relieve the current pain or if it might lead to new issues, such as more adhesions.
- Clarify the chances of pain relief, the long-term outlook, and whether there are less drastic treatments that could be tried first.
- Explore all non-surgical or minimally invasive options for relieving blockages before deciding on an ileostomy.

3. Surgical scope options
- If reversal is not possible and the large intestine is severely diseased, some suggest removing the entire colon, rectum, and anus to prevent future complications.

4. Lifestyle impact of an ileostomy
- Be prepared for significant lifestyle changes. High-output ileostomies may require emptying a pouch 10–11 times a day, while lower output usually means 5–6 times daily.
- Sometimes, output can be slowed with dietary changes or supplements.

5. Self-advocacy
- Conduct thorough research using medical journals, patient forums, and manufacturer websites.
- Keep detailed notes, ask every question you have, and take your time with the decision.
See full discusison
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