Topic Explanation
The forum discussion revolves around a 39-year-old individual with Crohn's disease who is facing their first major surgery. They are scheduled for an ileostomy and possibly a resection of the small intestine due to a partial blockage. The individual is confused about whether they need an ileostomy or a jejunostomy, given that their worst strictures are in the jejunum and duodenum. They seek clarity on how an ileostomy would allow these sections to rest and are eager for insights before consulting their surgeon.

Advice and Insights

- Consult Medical Experts:
- Write down your concerns and questions to ensure you address them with your medical team.
- Be proactive in seeking detailed answers from your healthcare providers, especially your primary care physician, as surgeons may not be experts in digestive diseases.

- Understanding the Procedure:
- The ileostomy is intended to let the bowels rest, improving the chances of a successful new connection.
- The strictures in the duodenum and jejunum are not as severe as those in the terminal ileum, which justifies the ileostomy.

- Surgery and Reversal:
- Reversal of an ileostomy is complex and may not return the digestive system to normal. Be prepared for potential complications.
- The surgical team is optimistic about the possibility of reversing the ileostomy.

- Personal Advocacy:
- Be your own advocate and persistently seek the information you need. It's crucial to be well-informed about your health and treatment options.

- Community Support:
- Engage with the community for support and shared experiences, especially post-operation.