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Jun 03, 2011

Lessons from a Long-Time Ostomate

Topic Explanation:
The forum topic titled "Lessons from a Long-Time Ostomate" features a long-time ostomate sharing their personal experiences and lessons learned over the years. The original poster, having lived with an ileostomy for over 30 years, offers practical advice and insights aimed at helping others navigate the challenges of living with an ostomy. The advice ranges from managing diet and appliance issues to handling social situations and maintaining a positive outlook.

Extracted Advice and Helpful Insights:
1. Diet and Output Management:
- Monitor your diet as it directly affects your output: "if you eat like a horse, you sh like a horse."
- For blockages, consider using mineral oil to help ease the passage.
- After experiencing fluid loss due to a stomach virus, replenish fluids and electrolytes with drinks like Gatorade and follow the BRAT diet (bananas, rice, applesauce, toast) to thicken output.

2. Appliance Management:
- Always carry an extra clip for your ostomy bag; a binder clip can serve as an emergency replacement.
- Change your appliance as scheduled to avoid complications, even if you feel you can extend its use.
- Ensure your ostomy supplies are well-stocked and check deliveries carefully to avoid mismatches like incompatible flanges and pouches.
- Use a belt or wrap to secure the appliance, especially in hot, humid conditions or if the appliance loosens unexpectedly.

3. Odor Control:
- To manage odors after emptying the appliance, use matches, scented candles at home, or consider home remedies like diluted baking soda or mouthwash.

4. Social and Psychological Aspects:
- Find clean and accessible bathrooms in places like hotel lobbies and bookstores when in public areas.
- Maintain confidence and a sense of humor when dealing with new social or intimate relationships.
- Embrace the ostomy as a life-saving procedure rather than focusing on the negatives, using it as an opportunity to live life fully and appreciate small joys.

5. General Tips and Reminders:
- Get up to empty your appliance during the night to avoid discomfort and sleep disruption.
- Keep a night light in the bathroom to avoid bright lights during nighttime visits.
- Be aware of how certain foods and drinks (like Hawaiian Punch or beetroot) can affect the appearance of your output, potentially causing
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