This topic is about parents seeking advice on managing their infant's high ostomy output and their concerns about the current medical care their child is receiving. They are considering changing hospitals or doctors to ensure better care for their child. Here are some helpful insights and advice for them:

1. Trust your instincts. If you feel that the current medical care is not meeting your child's needs, seeking a second opinion or transferring to another hospital can be a good step. Some recommended pediatric centers include:
- Children’s Hospital of Philadelphia (CHOP)
- Mayo Clinic Florida
- Cleveland Clinic Florida
- Nationwide Children’s Hospital

2. Keep a close eye on your child's electrolyte levels. Ensuring that these remain stable is crucial, especially when dealing with high ostomy output. This indicates that fluid management is being handled properly.

3. Connect with other families who have children with the same condition. This can provide valuable support and practical advice. You can find parent-to-parent guidance through resources like the Reach HD website, which offers stories and direct contact options for support.

4. Building a support network with families in similar situations can be incredibly helpful. While adults with ostomies can offer general resources, parents who have gone through similar experiences with their children can provide the most relevant tips and emotional support.