Color Logo for MeetAnOstoMate
Sponsored by Hollister
Login   |  
Forgot password?
 
Forum
Videos
Reviews
About Us
Color Logo for MeetAnOstoMate
Where Everybody Understands You
41,406 members
Feb 24, 2024

Recovering from Ileostomy Surgery - Seeking Advice on Persistent Tiredness

This topic is about a 75-year-old person who is experiencing extreme fatigue and brain fog three months after undergoing ileostomy surgery with a mucus fistula. Before the surgery, they spent six weeks in the hospital recovering from a bowel perforation and severe illness. Currently, their daily activities are limited to short walks, brief drives, or social visits, but they can only manage one activity per day before needing to rest. They maintain hydration with electrolyte drinks, and recent bloodwork was normal. Their doctor has prescribed folic acid, and they are seeking advice to help reduce tiredness and improve energy levels.

Here are some helpful insights and advice shared by others:

1. Recovery timeline
- It can take 5–6 months to regain everyday energy, and full recovery from major abdominal surgery might take up to two years, especially for older adults or those with multiple surgeries.
- It's important to accept the need for naps and pacing yourself; listen to your body when it signals that you are doing too much.

2. Rest and activity balance
- Continue with gentle exercises like short walks and gradually increase activity. Physiotherapy can be beneficial if possible.
- Muscle weakness after prolonged hospitalization, known as Critical Illness Myopathy, is common. Structured physical therapy or beginner routines on YouTube can help rebuild strength.
- Keep moving at your own pace; some have progressed from shuffling to cycling by following this approach.

3. Nutrition and supplementation
- Ensure a high-protein diet with foods like turkey, eggs, and unprocessed foods. Consider adding protein supplements if needed.
- Maintain hydration with electrolyte drinks.
- Even if bloodwork appears normal, consider checking and supplementing the following:
- Vitamin B12 (injections or oral)
- Magnesium
- Iron (a full iron panel, not just hemoglobin)
- Vitamin D (often prescribed seasonally)
- Continue with folic acid, as some notice fatigue improvement within hours of dosing.

4. Medical follow-up
- Request specific vitamin and mineral tests and advocate for yourself if they are not routinely ordered.
- Persistent fatigue might also be due to an unresolved infection in a fistula, so continue monitoring with your surgical team.

5. Mind-set and expectations
- Healing speeds vary, and being hard on yourself can add stress. Allow yourself to rest without guilt and acknowledge that healing may be slower with age.
- Community encouragement: others in their 70s and 80s confirm that progress is possible with patience, proper nutrition, movement, and medical support.
See full discusison
Gray Logo for MeetAnOstoMate
MeetAnOstoMate.org

MeetAnOstoMate is a remarkable community of 41,406 members.

“Every morning with my coffee, I read here and feel wrapped in warmth - I hardly post, but it still feels like family.”

“Our oncologist literally wrote down the link; they said more patients need this website.”

“This place pulled me out of the dark. I went from lurking to living again.”

“At 3am, someone’s awake somewhere in the world. I’m never alone here.”

Join Free

Popular Topics

hello Stomies:-)
Hello to you who may read this.
Heyy I’m new here!
Saturday Night at the Bodega
Let’s see them
Cohesive Ring Swelling Around Stoma: Need Advice
How do you clean the end of your drainable bag?
M9 Deodorant: Miracle or Myth?
First Solo Bag Change and Embracing My New Body
Ileostomy Reversal

New Topics

Partial Blockage Concerns with Ileostomy
Radiation and Chemo Effects on Colostomy
Advantages of Barbie Butt?
Rugby Player with an Ostomy Aiming for the World Cup
Happy Veteran Day
New member
BEING GOOD
A Little Help From My Ostomate Family?
Reversal with a Feeding Tube
And then....silence
About us | Privacy policy | Terms of use | Ostomy Blogs | Ostomy Q&A | Guides | Contact Us
This site is protected by reCAPTCHA and Google Privacy Policy and Google Terms of Service apply.
Copyright (c) MeetAnOstoMate.org All Rights Reserved
Create Account
Login
↑