This topic is about someone who is dealing with severe rectal pain and other uncomfortable symptoms, and is considering having their J-pouch removed. They are hesitant because of the fear of another surgery, but the pain has become too much to bear. Here are some pieces of advice and insights shared by others who have faced similar situations:

1. Take the time to do thorough research and consider getting second or even third opinions from different surgeons. It's important to be actively involved in the decision-making process and to ask detailed questions about your options, the risks involved, and how your personal medical history might affect the outcome.

2. Some people who have kept their rectum after an ileostomy report ongoing severe rectal pain. They suggest that having the rectum removed earlier might have been beneficial.

3. One person shared a positive experience after having their J-pouch removed and receiving an end ileostomy. They also had their anus sewn closed, a procedure sometimes referred to as "Barbie Butt." They are now pain-free and describe their quality of life as excellent, noting that they "poop into the bag and don’t even know it’s happening."

4. If you decide on an ileostomy, discuss with your surgeon whether the rectum should also be removed during the same surgery to prevent continued rectal pain.

5. Look into alternative options like the BCIR (Barnett Continent Intestinal Reservoir). Reach out to specialized clinics in the U.S. and gather experiences from other patients to determine if this option might be suitable for your condition.

6. It's important to maintain self-confidence and hope. Managing your fears and staying informed and proactive in your medical care can lead to better outcomes.

7. Sharing your progress with others can be helpful, as community members appreciate updates and it can assist others who are facing similar decisions.