Topic Explanation

The forum topic is about a deeply personal and spiritual experience shared by a user named Jayne, which occurred before her TIES device explant surgery. Jayne recounts a profound, almost other-worldly experience she had in September 2019, the night before her surgery. She describes feeling a deep sense of loss and despair, akin to a bereavement, as she faced the failure of the experimental TIES device implanted in her body. Seeking solace, she wandered through the hospital and ended up playing a grand piano in an atrium, which led to a transformative and humbling experience. Jayne shares this story to convey the emotional and spiritual journey she underwent and to offer support and resonance to others who might be going through similar experiences.

Advice and Insights

1. Acknowledgment and Support:
- Several users expressed gratitude and support for Jayne's courage in sharing her deeply personal experience.
- They acknowledged the importance of sharing such experiences, even if they might attract ridicule or criticism, as they can open up new perspectives and dimensions on life.

2. Spiritual Experiences:
- One user shared a similar spiritual experience during a time of intense pain, where they felt the presence of a deceased loved one guiding them through the pain. This highlights that spiritual experiences can provide comfort and relief during difficult times.

3. Understanding TIES:
- TIES (Transcutaneous Implant Evacuation Solution) is a novel implant device under medical trial, aimed at providing a controlled 'bagless' waste management system for ileostomists.
- The device is still in the clinical trial stage and not yet available for general use. It has not received CE certification and is currently only used within a clinical trial environment.
- The trial is industry-sponsored, and there is limited independent data available for public inspection.

4. Caution and Research:
- Users are advised to approach new medical devices like TIES with caution and to conduct thorough research. There is a need to be wary of marketing claims and to understand that such devices are aimed at managing problems rather than curing them.
- The importance of responsible research and development in medical technology is emphasized, as it is crucial for progress in surgical interventions for bowel patients.

5. Emotional and Psychological Support:
- The sharing of personal experiences and feelings on forums can provide emotional and psychological support to others who might be going through similar challenges.
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