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Apr 06, 2024

An 'Other-Worldly' Heart-Centered Experience Before My TIES Device Explant Surgery

This topic is about a personal experience shared by someone who was part of a clinical trial for a medical device called the Transcutaneous Implant Evacuation Solution (TIES). This device is designed to help people with ileostomies manage waste without needing a bag. The author describes a profound experience the night before having the device removed, which brought them peace and comfort. Here are some insights and advice related to this experience and the TIES device:

1. The night before the explant surgery, the author felt a deep sense of loss and grief over the removal of the TIES device. Seeking solace, they found themselves playing a grand piano in an empty atrium, despite not having played in years. This unexpected musical experience brought them a sense of calm and connection, which stayed with them through the surgery and beyond.

2. The TIES device is still in a closed clinical trial and is not yet available in the USA. It aims to provide a continent, bag-less option for waste management for ileostomists. However, the trial is secretive, and there is limited publicly available data. The author had the device removed due to complications and is awaiting further surgery.

3. Spiritual experiences during times of illness are common and valid. Many people find comfort in sharing these experiences, and they should not fear ridicule. Such moments can provide exactly what is needed during difficult times.

4. When learning about the TIES device, it's important to approach the information with caution. The manufacturer's marketing may present the device as a "cure," but it is actually a management tool. The secrecy of the trial and lack of independent data suggest a need for careful consideration.

5. In online forums, sharing experiences publicly can help others, and receiving "likes" can offer silent support. For more personal or sensitive discussions, private messaging is an option.
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