Color Logo for MeetAnOstoMate
Sponsored by Hollister
Login   |  
Forgot password?
 
Forum
Videos
Reviews
About Us
Color Logo for MeetAnOstoMate
Where Everybody Understands You
41,406 members
May 10, 2024

How to Help Ostomates Overcome Fear and Isolation?

This topic is about helping people with ostomies overcome feelings of fear and isolation. It highlights the challenges faced by those who have undergone ostomy surgery, such as the fear of leaks, and offers suggestions on how to support them in regaining confidence and connecting with others. Here are some practical ideas and insights shared by the community:

1. Hospital and Clinical Introduction
- Nurses, surgeons, and ostomy care teams should provide patients with information about online forums, local support groups, charity journals, and mentor contacts while they are still in the hospital or rehabilitation.
- Some healthcare professionals and volunteers already distribute information about support sites and journals to patients.
- Leaving flyers in clinic waiting rooms is a low-cost way to spread awareness.

2. Peer Mentoring and Outreach
- Volunteers can visit new patients in hospitals or connect with them through stoma nurses, sharing personal experiences and offering support.
- Personal stories, booklets, or articles left in waiting rooms can inspire and reassure new ostomates.
- Informal networks can be formed through events and local meetings to provide ongoing support.

3. Media and Public Awareness
- Including ostomy-related storylines in media, such as TV shows or celebrity endorsements, can help normalize ostomies and reduce stigma.
- Encouraging subtle mentions in scripts, advertisements, and social media can start conversations and raise awareness.

4. Local Support Groups
- Monthly in-person meetings offer face-to-face reassurance, especially for those who prefer not to use the internet.

5. Psychological Support
- Professional counseling is recommended to help manage anxiety and depression following major surgery and lifestyle changes.
- Knowing that others share similar experiences can be a significant step toward healing.

6. Appliance Confidence and Practical Tips
- Using properly fitting systems and accessories can reduce anxiety about leaks. Some helpful items include belts, specific pouches, and extended wear strips.
- Changing the barrier in the morning when output is low and carrying a "go-bag" with supplies can provide extra security.
- Showering with the pouch on and making diet adjustments can help prevent mishaps.

7. Travel and Lifestyle Examples
- Many members share stories of returning to work, traveling, and enjoying activities like concerts and dates, all managed with preparation and humor.
- Occasional leaks are seen as survivable and often become humorous memories.

8. Reassurance for New Ostomates
- Fear of leaks typically decreases over time with experience and community support.
- Persistent leaks should be assessed by a stoma nurse to address any fit or product issues.

9. Manufacturers and Resources Mentioned
- Some recommended products include Hollister pouches, belts, and extended wear strips.
- Publications and organizations like Phoenix Magazine, UOAA, and the Crohn’s & Colitis Foundation offer valuable resources and support.
See full discusison
Gray Logo for MeetAnOstoMate
MeetAnOstoMate.org

MeetAnOstoMate is a remarkable community of 41,406 members.

“I found real people, real humor, and answers I couldn’t get anywhere else.”

“The support here impressed my husband’s medical team - they plan to recommend it.”

“This community saved me when I thought I was a freak. Now I’m thriving.”

“Thank god for this site - I finally knew what to ask my surgeon.”

Join Free

Popular Topics

I wanna hear all the reasons!
Having Good Luck Finally With Leaks
OH, MY!
Dealing with Body Odor: Tips and Solutions
Grateful
Stoma Surgery Bringing Confidence and a Fresh Start
Black Polyp on Stoma: Seeking Advice and Experiences
Ileostomy Reversal
Cushion for Barbie butt
A DOGGED EDUCATION

New Topics

HIKING THE DESERT
B. Withers - Be Kind 91-92
BEING GOOD
hello Stomies:-)
Hobbies
Hip Replacement After Stoma Surgery Concerns
B.Withers - B.Kind 58
Issues with Hollister 8678 Pouch Leaking
Typical kiwi
Irrigation Cap or Plug for Stoma Covering
About us | Privacy policy | Terms of use | Ostomy Blogs | Ostomy Q&A | Guides | Contact Us
This site is protected by reCAPTCHA and Google Privacy Policy and Google Terms of Service apply.
Copyright (c) MeetAnOstoMate.org All Rights Reserved
Create Account
Login
↑