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May 25, 2024

Ileostomy for Slow Transit Constipation - Seeking Advice and Reassurance

Topic Explanation

Molly, a 43-year-old mother from Michigan, is seeking advice and reassurance regarding the possibility of undergoing an ileostomy due to her struggles with slow transit constipation and significant gas in her large intestine. She has been dealing with these issues for nearly five years, which have severely impacted her quality of life. Molly is particularly concerned about whether an ileostomy will alleviate her gas issues, as she is scheduled for tests and consultations at the Mayo Clinic. She also suffers from a severe anxiety disorder, which heightens her fears and doubts about the procedure.

Advice and Insights

1. Gas Management with Ileostomy:
- Gas with an ostomy can cause the pouch to balloon. Some manage gas with peppermint tea, IBgard, or Gas-X.
- Gas from the colon is unlikely with an ileostomy since the output exits before reaching the colon. However, some individuals still experience painful gas due to the confined space in the ileum.

2. Personal Experiences with Ileostomy:
- Several individuals reported significant improvements in quality of life after getting an ileostomy, despite initial challenges.
- Some experienced relief from constipation and abdominal discomfort, while others noted that gas issues persisted but were manageable.
- A temporary ileostomy can be a test to determine if it alleviates symptoms before committing to a permanent solution.

3. Surgical Considerations:
- A total colectomy and "Barbie butt" (removal of the colon and rectum) can improve quality of life by eliminating the source of constipation and gas.
- It's important to rule out other causes of slow transit, such as female prolapse, before proceeding with surgery.

4. Choosing a Medical Facility:
- Both Mayo Clinic and Cleveland Clinic are highly regarded for colorectal surgeries. Some suggest having tests done at the same facility where surgery will be performed for consistency.
- Consulting with a urogynecologist to rule out prolapse issues is recommended.

5. Managing Anxiety:
- Seeking therapy or psychiatric help can be beneficial for managing anxiety related to medical procedures.

6. Practical Tips for Living with an Ostomy:
- Ostomy care can be time-consuming, with frequent emptying and potential for leaks, but many find it manageable with the right products and routines.
- Watching YouTube videos and engaging with support groups can provide practical insights and solutions for living with an
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