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Jul 07, 2024

Chronic Crohn's Complications - Is Bowel Movement Possible with an Ileostomy?

Topic Explanation:
The discussion revolves around a person who has had a history of ulcerative colitis and now suffers from severe Crohn's disease. They underwent surgery to remove their large intestine and rectum, and currently have an ileostomy. Recently, they experienced complications including the leakage of stool, blood, and mucus from both the vagina and anus, raising concerns about the possibility of bowel movements despite having an ileostomy and no colon.

Advice and Insights from Replies:
1. Immediate Medical Attention:
- Several participants strongly advised seeking immediate medical attention by visiting the emergency room, emphasizing the urgency due to the risk of infection and complications from the described symptoms.

2. Understanding Ileostomy and Discharges:
- It was clarified that while traditional bowel movements are not possible without a colon, discharges of mucus, blood, and residual stool can occur. These are remnants from the small intestine or due to the presence of a fistula.

3. Fistula Concerns:
- The presence of a fistula was discussed, noting that fistulas do not heal on their own and require medical intervention. The discharge of stool and other substances through the vagina suggests that the fistula is active and possibly infected.

4. Importance of Follow-Up and Self-Advocacy:
- The importance of follow-up medical appointments and being proactive in understanding and participating in one's own medical care was highlighted. Suggestions included keeping a detailed journal of symptoms and questions for doctors, and possibly bringing someone to appointments for support and to help remember the information discussed.

5. Seeking Second Opinions:
- The idea of seeking second or third opinions from specialized medical centers like the Mayo Clinic was suggested to ensure a comprehensive evaluation and treatment plan.

6. Personal Experience Sharing:
- A participant shared their personal experience with a loop ileostomy, which can sometimes allow stool to pass in an abnormal way due to backflow, indicating that while rare, such occurrences are possible but indicate a problem with the stoma configuration.

7. Outcome After Emergency Care:
- The individual sought emergency care, resulting in hospital admission and various interventions including a pouchoscopy, antibiotic treatment for a urinary tract infection, and the temporary use of a Foley catheter. This led to an improvement in their condition.
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