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Aug 01, 2024

Ileostomy and Total Colectomy Success Rates and Outcomes

The topic at hand is about someone who is preparing for a permanent ileostomy and total colectomy, which is a significant surgical procedure. This person is understandably anxious and is seeking information about the success rates, potential complications, and specific terms related to the surgery, such as "Barbie butt" and "Ken butt." Here are some insights and advice shared by others who have been through similar experiences:

- It's completely normal to feel anxious before surgery. Many people find that their nervousness increases as the surgery date approaches, but this is a temporary feeling. Focusing on the positive changes that the surgery can bring to your life might help ease some of the anxiety.

- The success rate for this type of surgery is generally high, and many people report significant improvements in their quality of life afterward. Long-term ileostomates, some with over 30 years of experience, often return to normal activities like working, traveling, and parenting. While no surgery is without risk, major complications are rare.

- It's a good idea to engage with medical support early on. Reach out to hospital stoma nurses to discuss any fears, learn about appliance options, and understand what daily life with a stoma will be like. In the UK, resources like the "Ileostomy & Internal Pouch Association" (IA) offer helpful websites and one-to-one peer support.

- Prepare a list of questions for your surgeon. Writing down every concern ensures you won't forget anything during consultations. If you still have doubts, consider postponing the surgery until you feel confident and trust your surgeon completely.

- The experience of your surgeon is important. Make sure to confirm how often they perform permanent ileostomies and total colectomies.

- There is a difference between removing the rectum and simply closing it off. Some people recommend requesting a total proctocolectomy to avoid future complications with the rectum. The terms "Barbie butt" and "Ken butt" refer to when the buttocks are sewn shut after the rectum is removed, leaving no anal opening, similar to the dolls. Simply closing the rectum but leaving it in place does not technically qualify as a Barbie/Ken butt.

- Maintaining a positive mental outlook is crucial. Acceptance and having faith in the process are often cited as important. Consider the current quality of life that is unacceptable and the potential for improved health and freedom after the surgery.
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