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Aug 11, 2024

Life After Anus Removal Surgery - Experiences?

Life after anus removal surgery can be a significant change, especially if you're dealing with issues like heavy mucus or fecal leakage. If you're considering this surgery, here's what you might expect and some advice from others who have been through it:

1. Post-operative seating and padding:
- Use a thin, soft pad to avoid putting pressure on the wound. Thick pads can be uncomfortable.
- Avoid donut cushions. Instead, opt for a full-surface cushion, preferably a gel one, or lean on one buttock until you heal. Car seats are usually more comfortable than hard chairs.

2. Pain and sitting tolerance:
- The area will be sore, but it's generally not overly painful. You might not be able to sit normally for a while, but cushions can help a lot.

3. Wound care:
- Keep the surgical site clean and dry to reduce the risk of infection.

4. Healing and time off work:
- Without complications, you might need about 2–3 months before returning to work, possibly starting part-time.
- Complications like an internal abscess can extend healing to about 6 months.
- Some people experience a quick, minimally painful recovery, while others find it takes longer than previous abdominal surgeries.

5. Long-term outcomes and reasons for complete removal:
- Many appreciate not having to deal with mucus, odor, or cancer/stump problems once the anus and rectum are removed. Some refer to this as the "Barbie butt" or "nice-guy" surgery.
- A total proctocolectomy, which involves removing the colon, rectum, and anus, is often chosen when future rectal use is impossible and to lower cancer risk. Surgeons may also remove the appendix during this procedure.
- Patients often report good long-term health and remission after the removal.

6. Alternative to surgery (for those who must keep the stump/anus):
- Routine flushing with warm water using an enema bulb can significantly reduce mucus leakage.

These insights can help you prepare for the changes and challenges that come with this surgery.
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