Color Logo for MeetAnOstoMate
Sponsored by Hollister
Login   |  
Forgot password?
 
Forum
Videos
Reviews
About Us
Color Logo for MeetAnOstoMate
Where Everybody Understands You
41,450 members
Aug 29, 2024

Ileostomy - total proctocolectomy

This topic is about someone who has been dealing with severe evacuation problems due to long-standing rectal disorders. These issues have led to chronic constipation and obstruction, and despite trying various conservative treatments like medications, biofeedback, and physiotherapy, nothing has worked. They had a loop ileostomy surgery to help divert the fecal stream away from the colon and rectum, which initially provided relief but only for a short time. Now, they are considering a total proctocolectomy, which involves removing the entire colon and rectum, as a potential solution.

Here are some pieces of advice and insights shared by others:

1. It might be helpful to repeat or review anorectal physiology studies, such as anal manometry, defecography, and balloon expulsion, before making a decision. Understanding the exact pelvic floor diagnosis is crucial.

2. If pelvic floor dysfunction, specifically pelvic dyssynergia, is the main issue, some suggest keeping the anus in place even if the rectum is removed. Closing the outlet can increase pelvic pressure and pain.

3. Some people have reported excellent results after having an end ileostomy with total proctocolectomy. This procedure can eliminate mucus build-up, rectal spasms, and the need to evacuate through the rectum. However, it's important to note that this surgery is irreversible, meaning there is no possibility of future reversal.

4. For those considering a permanent ileostomy, removing both the rectum and anus, sometimes referred to as "Ken butt," can stop mucus production and improve quality of life.

5. There are limited treatment options for pelvic floor dysfunction beyond biofeedback, pelvic physiotherapy, and Botox injections. It's important to discuss with surgeons the potential for increased pressure problems if the anus is closed.

6. When making a decision, consider factors such as the permanence of the stoma, the severity of pelvic floor dysfunction, tolerance of mucus and pressure, and personal preferences regarding future options.
See full discusison
Gray Logo for MeetAnOstoMate
MeetAnOstoMate.org

MeetAnOstoMate is a remarkable community of 41,450 members.

“Every morning with my coffee, I read here and feel wrapped in warmth - I hardly post, but it still feels like family.”

“Our oncologist literally wrote down the link; they said more patients need this website.”

“This place pulled me out of the dark. I went from lurking to living again.”

“At 3am, someone’s awake somewhere in the world. I’m never alone here.”

Join Free

Popular Topics

Black Polyp on Stoma: Seeking Advice and Experiences
Meanwhile, back at the beach
Odd Shaped Stoma: Advice Needed for Proper Fit
Keep laughing
A HUMORLESS MAN
Newbie
Travel Tips for Ostomates Visiting Switzerland
Anyone taking Gattex?
Hello new friends!
Leaking Ostomy: Seeking Advice for Belly Button Issues

New Topics

Moldable Barrier Ring Tips: Beachboy Style
New Ostomate
Transverse Colostomy Challenges: Seeking Advice on Prolapsing and Retracting Stoma
Hi from Sweden
Rerun: The fortune tellers curse...finis
A 'SERIOUS' CONVICTION
Ostomy Tips, Tips for Ostomies, Prune Juice to Moderate Paramecium Outbreaks, Glad-handing Your Way to Success, et al
What Is Normal After Surgery and Coping with a Colostomy?
GREEN THUMB?
Introduction of myself
About us | Privacy policy | Terms of use | Ostomy Blogs | Ostomy Q&A | Guides | Contact Us
This site is protected by reCAPTCHA and Google Privacy Policy and Google Terms of Service apply.
Copyright (c) MeetAnOstoMate.org All Rights Reserved
Create Account
Login
↑