This topic is about dealing with clothing-induced blockages and discomfort after undergoing multiple abdominal surgeries. The person sharing their experience has had several surgeries, including a failed J-pouch and adhesiolysis, and now faces issues with clothing that fits snugly around the waist. This leads to cramping, blockages, and uncomfortable evacuations. They are currently limited to wearing sweatpants or elastic-waist garments and are seeking advice from others who might have similar experiences.
Here are some helpful insights and advice:
1. Tight waistbands cause immediate discomfort, so the person cannot wear standard-fit jeans or underwear. They are unsure if a hernia is present and have recently developed a fistula, making them hesitant to undergo more surgery.
2. Clothing alternatives that avoid pressure on the waist include:
- Scrub pants in various colors, which can be layered with long underwear in colder weather.
- Jeggings, leggings, yoga pants, lightweight beach pants, and drawstring cargo pants. These can be styled with longer tops, sweaters, or boots for different seasons.
3. Possible factors contributing to discomfort might include:
- A post-surgical hernia or a very soft or flush stoma that gets easily flattened by waistbands. It might be helpful to seek a medical evaluation.
4. Coping strategies and self-advocacy tips:
- Be persistent with healthcare providers. If one dismisses your concerns, seek another opinion until you find someone who listens.
- Monitor day-to-day variability, allow yourself to have bad days, but focus on small daily goals and try to maintain a sense of humor.
- Emotional support from pets, friends, or online communities can greatly improve your outlook.
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