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Sep 17, 2024

Living with an Ileostomy and a Feeding Tube: Seeking Advice

This topic is about transitioning from a feeding tube to eating more solid foods while living with an ileostomy. The person involved is concerned about how their body will adjust, especially regarding weight and nutrient absorption. Here are some helpful tips and insights for managing this transition:

1. **Understanding Stoma Output**
- It's normal to see recognizable food particles with an ileostomy.
- Tube feeds can increase motility and have a mild laxative effect; reducing formula might slow things down a bit.
- Eating by mouth helps keep the intestinal villi active and prevents atrophy.

2. **Medical Supervision During Weaning**
- Weaning should be coordinated by a GI physician or GP, with a dietitian adjusting intake as needed. Make sure you know who is leading this process.
- Gradually reduce formula while increasing well-tolerated oral calories. Keep an eye on your weight, lab results, and hydration levels.

3. **Building Thicker Output and Slowing Transit**
- Consider eating foods that help bulk up output, such as bananas, marshmallows, white rice, and pretzels.
- Some people use anti-motility medication, but only under medical advice.

4. **Protein for Recovery and Weight Maintenance**
- Increasing protein intake can help rebuild muscle and maintain weight. Aim for 40–60 grams per day, and later 70–100 grams if advised by a specialist.
- A high-protein diet with foods like eggs, meats, and protein powders can help reduce reliance on TPN (total parenteral nutrition).

5. **Hydration and Electrolytes**
- Ileostomates lose a lot of fluids and salts, so it's important to stay well-hydrated to protect kidney health.
- Consider drinks like Gatorade, Body Armour, Prime hydration drink, DripDrop ORS, and Ensure (via tube). Sugar-free options include Zevia soda, Lipton Diet Tea, and almond milk.
- Check labels for sweeteners like sucralose, stevia, or Splenda, and avoid sugar alcohols, phenylalanine, and aspartame if they cause issues.
- Some people can handle caffeine; if you drink coffee, balance it with extra water.

6. **Diabetes or Pre-diabetes Considerations**
- High-sugar sports drinks can raise glucose levels, so sugar-free ORS or low-sugar options are better for those with pre-diabetes or type 2 diabetes.
- Monitor A1C and kidney tests if you have persistent high urine output, as it could be related to diabetes.

7. **Trying New Solid Foods**
- Reintroduce solid foods slowly, one at a time, to see how your body tolerates them. Be cautious with foods like popcorn, lettuce, and mushrooms, which can sometimes cause blockages.
- Keep a diary of what you eat and your output to track how different foods affect you.

8. **Feeding-Tube Management**
- Large-bore gastrostomy tubes can sometimes be re-inserted at home, but it's safest to have a professional show you how to do it first.

9. **Medication**
- Flomax may be prescribed to improve urine flow when hydration levels are high.
See full discusison
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