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Oct 08, 2024

Ileostomy for 45 Years - Now Facing Kidney Issues

This topic is about the experiences and concerns of someone who has lived with an ileostomy for 45 years and is now noticing a decline in kidney function. They are curious if this is a common issue among long-term ileostomy patients or if it might be related to ongoing electrolyte imbalances.

Here are some helpful insights and advice shared by others:

1. Kidney issues tend to become more common after living with an ileostomy for 40 to 50 years. Some people have even needed dialysis after several decades.

2. Dehydration, whether chronic or occasional, is a significant factor in kidney decline for those with an ileostomy. This is because they often lose more fluids and electrolytes.

- It's important to drink fluids consistently throughout the day. Make sure to include drinks that replenish sodium, potassium, and magnesium, not just plain water.
- Sports drinks with balanced electrolytes, like Gfit, which are low in sugar and free from artificial sweeteners, are recommended.
- Keep an eye on your stoma output. Watery output can indicate poor absorption and a higher risk of dehydration.

3. Medical follow-up is crucial:

- Establish a relationship with a nephrologist for regular lab monitoring, which can help catch issues early.
- Some people receive weekly IV fluid and electrolyte infusions to help maintain kidney function.
- If kidney function continues to decline, seeing a urologist is advised.

4. Medication and supportive therapy can be beneficial:

- Some nephrologists prescribe oral Sodium Bicarbonate tablets to reduce acid load and slow kidney decline. Users have reported stabilization or even improvement in kidney function.

5. There are success stories where individuals have seen improvements or stability in their kidney function through aggressive hydration plans, close monitoring by a nephrologist, and, when necessary, IV fluids or Sodium Bicarbonate.

6. It's important to remember that once significant kidney damage occurs, it cannot be reversed. Therefore, prevention and early management are essential.
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