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Oct 28, 2024

Coping with a Retracted Stoma: Seeking Advice and Tips

This topic is about dealing with the challenges of a retracted ileostomy, particularly focusing on issues like leaks, product choices, and skin-care strategies. The person sharing their experience has had their ileostomy for six months following emergency surgery. They are facing some difficulties and are looking for advice and solutions. Here are some insights and suggestions that might help:

1. Current Routine and Challenges:
- The person uses a two-piece SenSura Mio Convex Deep Click barrier with a thick Eakin seal, changing it daily in the morning.
- They have been experiencing "silent leaks" and more recently, evening blow-out leaks, which are messy and happen around dinner time.

2. Attempts to Solve the Problem:
- Tried using thinner seals and layering them, but this led to immediate skin irritation and quicker leaks.
- Reduced the dose of loperamide, which is used to slow down bowel movements.

3. Concerns and Considerations:
- Skin irritation is becoming a problem, and they are looking for new solutions and product suggestions.
- They are hesitant about undergoing revision surgery due to a history of multiple surgeries.
- They are questioning whether the use of loperamide might be contributing to the issues.

4. Advice and Suggestions:
- Continue using a convex wafer but consider trying thinner barrier rings to prevent output pooling.
- If current methods fail, surgical revision might be a long-term solution, as some have undergone multiple revisions for similar issues.
- Use a liquid skin protectant like Marathon Skin Protectant or 3M Cavilon Advanced Skin Protectant to protect the skin from leaks.
- Consider alternative sealing systems, such as Coloplast Brava Skin Barrier Sheets or using a support belt to improve adhesion.
- If experiencing skin irritation with Eakin rings, try other brands like Coloplast Brava or Hollister Adapt.
- Adjust loperamide dosage with professional guidance, as over-slowing output can lead to thicker output and pooling.

5. General Encouragement:
- Many people understand that a retracted stoma can lead to chronic leaks. Finding the right combination of products and techniques is often a process of trial and error, and professional revision is an option if needed.
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