This topic is about a person who has lived with an ileostomy for 45 years, sharing their experiences and offering practical advice and positivity to others in similar situations. Here are some of the insights and tips they provide:
- Think of your ostomy as an "ability" rather than a disability. You can still do anything you want, and sometimes even better than before.
- Be open about your experience. Share your story and, if you feel comfortable, show your pouch and scars. True friends will accept you and won't be scared away.
- Keep a positive attitude. If someone reacts negatively, they might not be worth your time. Move on and keep trying to connect with others.
- Relationships are definitely possible. The author has been married three times, all after their ostomy surgery.
- Participate in social events, classes, sports, work, and travel with confidence.
- Stay well-hydrated, introduce new foods slowly, and chew your food thoroughly to avoid blockages and hospital visits.
- Keep smiling and remember that you are as beautiful as you feel.
- A warm closing blessing: "God bless you all!"
Additional advice and insights from the community include:
- Community support is important. Many members agree that having a positive and open attitude is beneficial and welcome the author to the forum.
- Mental adjustment after surgery can be challenging. One spouse mentions that reading uplifting and humorous posts helps her husband cope mentally after his unexpected stoma. Shared stories can ease psychological struggles.
- Pride and openness can help others. Another long-term ileostomate, who has lived with an ostomy for about 50 years, agrees that being open can assist others who may need an ostomy in the future and emphasizes living a full life without shame.
- Handling insensitive remarks:
- If someone makes hurtful jokes about your ostomy, understand that it often comes from their own insecurities. Consider dismissing the comment rather than letting it affect you.
- If the remark continues to bother you, address it directly, but remember not to let such comments ruin your social enjoyment.
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