Topic Explanation:
The discussion in the forum revolves around severe stoma swelling and its impact on lifestyle. The original poster (OP) is experiencing significant issues with their stoma, including retraction and swelling, which has escalated to the point where frequent appliance changes are necessary, and daily activities are severely restricted. The OP has tried various products without success and is scheduled for a surgical refashioning. They are seeking advice and support from others who might have experienced similar issues.
Extracted Advice and Helpful Insights:
1. Product Recommendations:
- Consider trying different brands and types of barrier rings and seals that might not have been used yet, such as the Salts brand barrier ring infused with aloe, which has been beneficial for skin health and appliance adherence.
- Explore the use of the Cera ring from Hollister, which reportedly does not swell as much as other products.
2. Skin Protection:
- Use skin protectants like the 3M Advanced Skin Protectant or Marathon to create a protective layer over the skin, which can help with appliance adherence and protect the skin from output.
- Lidocaine 2% gel can be used as a topical anesthetic to relieve pain and improve pouch adherence, which may help in healing the skin.
3. Diet and Nutrition:
- It's important to continue eating and drinking adequately despite fears of aggravating the stoma issue, as avoiding food can lead to other health complications.
4. Surgical Considerations:
- If appliance and skin management strategies fail, surgical revision or relocation of the stoma might be necessary. It's also crucial to ensure the skin around the stoma is in good condition before surgery to facilitate healing post-operation.
5. Emotional and Psychological Support:
- Engage with healthcare professionals like dieticians and stoma nurses regularly and persistently to get the necessary support and adjustments in stoma care.
- It's important to seek and accept emotional and psychological support, whether through professional counseling or community support groups, to manage the stress and frustration that come with stoma complications.
6. Practical Tips for Appliance Management:
- Experiment with different types of products like strip paste or convex wafers to find a better fit and prevent leaks.
- Ensure thorough cleaning of the stoma site during appliance changes, using products that do not leave a residue that could interfere with appliance adherence.
7. Address
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