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Jan 27, 2025

Severe Stoma Swelling and Lifestyle Impact

This topic is about dealing with the challenges of managing a retracted stoma, which has led to issues like extreme swelling of barrier rings, leaks, and skin damage. The person experiencing these issues has tried various solutions but is still facing difficulties, leading to a scheduled private stoma refashioning. Here are some helpful insights and advice shared by others:

1. Salts Healthcare Products:
- Consider using Salts Aloe Rings, which are thin, aloe-infused, and strong. They are known to soothe irritated skin and provide secure wear.

2. Hollister Products:
- Try CeraRing barrier rings, which are ceramide-based and swell less than other brands, making them suitable for those with product allergies.
- Hollister convex wafers might help improve the seal on a retracted stoma.

3. Coloplast Products:
- Be cautious with Brava rings as they may swell excessively and affect blood flow.
- Sensura Mio bags can be paired with other rings.
- Coloplast wafers with zinc might aid in skin healing; consider discussing options with a professional.

4. 3M Skin Protection:
- Use 3M Advanced Skin Protectant and 3M Marathon to create a waterproof layer over raw skin, which can improve adhesion and reduce pain.

5. Alternative Barrier Rings & Pastes:
- Marlen Ultraseal Barrier Rings are known for minimal swelling and easy cleanup.
- Moldable strip paste can be shaped onto the wafer, which is useful for very low or retracted stomas.

6. Pain Control & Site Cleaning:
- Lidocaine 2% gel can be applied for 5 minutes during changes to numb the skin, allowing for thorough cleaning without affecting adhesion.

7. General Management Tips:
- Maintain adequate food and fluid intake to prevent worsening skin damage.
- Consider allergy testing to rule out reactions to product components.
- Stay in contact with a dietitian and stoma nurse for ongoing support.
- Don't feel guilty about opting for private surgery if NHS waits are long; having stable skin and a reliable appliance plan is crucial for successful refashioning.

8. Support & Reassurance:
- Many people have undergone stoma revisions and found improvement. With perseverance and the right products, life can get better.
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