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40,825 members
Jul 09, 2011

Seeking Support from Peers with Ileostomy Experience

Topic Explanation
The discussion revolves around a high school student seeking support and understanding from peers who have experience with ileostomy. The student had recently undergone an ileostomy and is facing challenges in their social life, particularly in romantic relationships and physical activities like sports. They are looking for advice and shared experiences from others who can relate to their situation, specifically focusing on managing relationships, participating in sports, and finding suitable protective wear for their stoma.

Advice and Helpful Insights from Replies
1. Relationships and Social Support:
- It's important to find someone who won't judge you for your medical condition; understanding and strong character are key traits to look for in relationships.
- Humor can be a powerful tool to cope with the challenges of living with an ileostomy and can help keep the atmosphere light and supportive among friends.
- Some forum members expressed that true friends and worthwhile partners will see beyond the ileostomy.

2. Participation in Sports:
- Protective belts specifically designed for ostomy patients, like the Stealth Belt, are recommended for engaging in sports to protect the stoma and provide comfort.
- Alternatives to team sports that involve less physical contact, such as tennis, bicycling, or badminton, were suggested to reduce the risk of stoma injury.

3. Protective Gear Recommendations:
- Multiple recommendations for the Stealth Belt were made, highlighting its effectiveness in securing the ostomy bag during various activities, including sports.
- For those looking for more rigid protection, a stoma guard was suggested, with links provided to specific products designed to shield the stoma from impacts.

4. General Encouragement and Support:
- Participants encouraged maintaining a positive attitude and self-confidence, which can influence how others perceive your condition.
- The importance of not hiding one's condition was emphasized, suggesting that openness can lead to greater acceptance by others.
- Support from the community, including older members who have lived with an ostomy for many years, was offered to provide guidance and reassurance.
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