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41,403 members
Jul 09, 2011

Seeking Support from Peers with Ileostomy Experience

This topic is about a high-school student who recently had an ileostomy due to Crohn’s disease. She is feeling a bit isolated after a breakup related to her surgery and is looking for support from someone who has been through a similar experience. She is also seeking advice on how to protect her stoma while continuing to play sports, especially basketball, during her senior year.

Here are some helpful insights and advice:

1. Relationships & Social Life
- Many people who had ileostomies during high school or college found that their peers eventually overlooked the pouch. Confidence and a good sense of humor can make a big difference.
- If someone can't handle your situation, they might not be worth your time. This experience can help you identify who your true friends are.

2. Coping Strategies
- Staying active and surrounding yourself with supportive friends can help prevent feelings of isolation.
- Humor can be a great way to cope. Many people with ostomies use jokes to lighten the mood.
- Your attitude matters. If you treat your stoma as no big deal, others are likely to do the same.

3. Protective Belts / Guards
- The Stealth Belt is highly praised and can be worn during various activities, including swimming and high-impact sports.
- The Stoma Guard by C&M Ostomy Supply is a rigid option recommended for contact sports.
- Ostomy Armor offers a metal-front guard, but it may need cushioning to comply with some sports rules.
- Searching for "activity stoma guard" or "protective belt for stoma" can help you find more products. Custom options might be necessary for heavy contact sports.

4. Sports Participation
- It's a good idea to check with coaches or referees about using any rigid guards.
- If basketball becomes challenging, consider trying lower-contact sports like tennis, cycling, or badminton.
- Staying active is encouraged, regardless of having an ostomy.

5. Costs & Practical Tips
- The Stealth Belt costs around $100. Having two can be convenient for continuous wear while one is being washed.
- In the summer, or when swimming, you might need to change your pouch and wash your belt more frequently.

6. Motivation & Encouragement
- Many older ostomates have led long, fulfilling lives, with plenty of dating and even marriage.
- For a boost of confidence, consider listening to "Simply the Best" by Tina Turner.
See full discusison
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