Color Logo for MeetAnOstoMate
Sponsored by Hollister
Login   |  
Forgot password?
 
Forum
Videos
Reviews
About Us
Color Logo for MeetAnOstoMate
Where Everybody Understands You
41,406 members
Feb 15, 2025

8 Months Post-Surgery: Feeling More in Control Now

This topic is about the journey of adapting and regaining control after colostomy surgery, specifically eight months after the procedure. The person sharing their experience had surgery due to colon cancer and has been navigating various challenges and changes since then. Here are some insights and advice based on their journey:

- Post-surgery challenges included pain and overheating, with difficulty sitting or standing for more than five minutes during the first five weeks. Over time, this improved, but they still experience heat flushes. They found relief using Lume body deodorant to manage the sweating.

- Chemotherapy side effects included damage to lymph nodes, weak ligaments, and neuropathy in the hands and feet. These issues have mostly resolved, with about 98% improvement in the hands and 90% in the feet. Relearning to walk and using stairs at work helped build strength.

- Ostomy challenges involved the initial one-piece hospital pouch failing once activity resumed. Changes in skin condition and stoma shape led to poor adhesion and leaks. Switching to a Coloplast SenSura Mio Click 2-piece system worked well in warmer months, but winter brought new issues with the baseplate lifting off. A recent CT scan revealed a new parastomal hernia, and a radiologist recommended a different appliance and a support belt.

- Constant adaptation is necessary, including changes in housing, exercise, diet, and clothing, as the body continues to change during the first year after surgery.

Advice and insights include:

1. For parastomal hernia and leakage:
- Consider using the Coloplast SenSura Mio Convex Flip 2-piece Click barrier, which is designed for hernias and irregular contours.
- Reinforce the edges with Coloplast Brava Elastic Barrier Strips – Curved, applying one on each side.
- Continue using the current SenSura Mio Click pouches with the new Flip barrier.
- Wear a hernia support belt full-time; the Nu-Hope 2-inch belt is recommended for comfort.

2. Mindset and long-term expectations:
- Leaks and appliance changes are ongoing concerns, even years after surgery. Adopting a problem-solving attitude can help reduce anxiety.
- Progress is not always linear, and new issues may arise as bodies and stomas evolve. Engaging with the community can provide reassurance.

3. Dealing with neuropathy and mobility issues:
- Others with similar chemo and surgery timelines report ongoing numbness but remain hopeful. Stair-walking and gradual activity have helped regain a normal gait.

4. Custom appliance solutions:
- If commercial baseplates fail, consider creating custom baseplates, securing them with prosthetic glue and belts. Manufactured bags can then attach to the custom base, potentially allowing for multi-month wear times.
See full discusison
Gray Logo for MeetAnOstoMate
MeetAnOstoMate.org

MeetAnOstoMate is a remarkable community of 41,406 members.

“I found real people, real humor, and answers I couldn’t get anywhere else.”

“The support here impressed my husband’s medical team - they plan to recommend it.”

“This community saved me when I thought I was a freak. Now I’m thriving.”

“Thank god for this site - I finally knew what to ask my surgeon.”

Join Free

Popular Topics

Binder Clips for Fixing Leaky Velcro Pouches
Early Christmas Giggle
Adjusting to Solid Foods Post-Surgery: Tips and Experiences
So first training for 10k done.
Bicycle or Moped for Post-Surgery Transport and Exercise Advice
Ostomy Belt Rash: Seeking Advice and Solutions
What's this coming from my bum?
Idk if I did this right 🥴
Keep laughing
Best Ostomy Support Belts for New Users

New Topics

Keeping distance
Debilitating Pain after Granulomas treated with Silver Nitrate
B. Withers - Be Kind 67
You Might be an Ostomate if...
FNG
B. Withers - Be Kind 65
hello Stomies:-)
Advice Needed on Managing a Urostomy Bag After Colostomy
MOTORCYCLE DREAMS
Images
About us | Privacy policy | Terms of use | Ostomy Blogs | Ostomy Q&A | Guides | Contact Us
This site is protected by reCAPTCHA and Google Privacy Policy and Google Terms of Service apply.
Copyright (c) MeetAnOstoMate.org All Rights Reserved
Create Account
Login
↑