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May 01, 2025

Seeking Advice on Managing Mucus Leaks with Ileostomy

This topic is about managing persistent mucus leaks from the rectum for someone with a loop end ileostomy. The person is considering a surgical option known as "Barbie butt," which involves the complete removal of the rectum and anal canal, to address ongoing issues with mucus leakage. They are seeking advice and insights on whether this is a good option and what life might be like after such a procedure.

Here are some helpful points and advice shared by others:

1. Mucus Production:
- As long as the rectum is present, it will continue to produce mucus. Using pads or liners and regularly emptying the mucus are the main ways to manage it conservatively.

2. Emptying Technique:
- When emptying the ostomy bag, sit on the back edge of the toilet seat and slide forward. This position can help drain rectal mucus simultaneously.

3. Medications:
- Mesalamine suppositories (1,000 mg every other day) can significantly reduce mucus and blood for some people. It's important to consult with a doctor before trying this.

4. Skin Protection:
- Products like Salts Aloe Rings have been helpful for some in clearing up skin irritation around the stoma and perianal area.

5. Surgical Options and Experiences:
- Many have opted for a total proctectomy (Barbie/Ken/Action-Man bum) and found it resolved mucus issues. Common experiences include:
- Initial difficulty with sitting; it's advised to avoid direct pressure until healing is complete.
- Temporary bladder or sexual function issues may occur but often improve as nerves recover, sometimes with medication.
- Some have experienced postoperative complications like abscesses, but these typically resolve.
- Long-term issues are rare, though one person reported bladder incontinence many years post-surgery.
- Alternatively, keeping a rectal stump is an option. Some people experience little to no mucus and live comfortably, though small discharges and occasional use of mesalamine are common.

6. Decision-Making:
- Quality of life is crucial. It's important to discuss the daily impact of your current situation with a colorectal surgeon. They can help weigh the surgical risks against the ongoing issues of leakage and infections.
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