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Mar 30, 2009

Struggling with Ostomy Bag Management at Night and in Social Settings

This topic is about managing an ostomy bag, especially at night and in social settings. A new ostomate is seeking advice on how to handle nighttime emptying and gas-induced "ballooning" of the bag after meals, which can be challenging when out with friends. Here are some practical tips and insights shared by others:

1. Emptying during the night:
- It's common for many to get up 1 to 3 times, or even 3 to 5 times, during the night.
- Try to go to bed with your pouch no more than a quarter full to reduce the risk of leaks when you roll over.
- Consider stopping eating 2 to 3 hours before bedtime to lessen overnight output.
- Learn your body’s timing, such as output occurring about 3 hours after a meal, so you can plan when to empty.

2. Reducing and managing gas or "ballooning":
- Adjust your diet by limiting foods that typically produce gas, like onions, garlic, spicy foods, eggs, cheese, broccoli, cabbage, beans, fried or sugary foods, and some vegetables, especially before social events. Eating smaller portions can also help.
- Maintain regular meal times for more predictable output.
- Over-the-counter aids like Beano or Gas-X (simethicone) can be helpful for some.
- Short, doctor-supervised courses of metronidazole/Flagyl can help reset bacterial balance if gas becomes extreme. Avoid alcohol and discuss with your GI doctor first.
- Always "burp" the pouch from an upright or standing position to avoid messy leaks.

3. Equipment solutions:
- Vented or filtered pouches with charcoal filters can slowly release odor-free gas and greatly reduce ballooning. These are available from companies like Hollister, Coloplast, and Convatec.
- The cost is approximately $50 for 30 pouches, or about $1.50 per day, similar to standard pouches. U.S. insurance coverage varies by state and plan, with some states covering Hollister and Coloplast better than Convatec.
- Contact manufacturers for free samples and coverage details: Convatec (1-800-422-8811), Coloplast (1-800-533-9464), Hollister (1-800-323-4060).
- The Osto-E-Z-Vent is a stick-on vent you can open to release gas quickly, though you still need to wake up to use it.
- Two-piece systems that accept either standard, vented pouches or vented caps offer flexibility. Some users find the extra cost worth the convenience.
- Avoid pin-pricking the pouch, as holes can defeat odor proofing. Use filtered pouches instead.

4. Physical aids and practical tricks:
- A ribbed cloth back brace from medical-supply stores can hold the pouch flat under clothes, muffle gas sounds, and hide ballooning. Two surgeons have confirmed it won’t harm the stoma.
- Always carry supplies so you can vent or change as needed. Many people vent discreetly in the car before driving off.

5. Support and information:
- Local ostomy support groups and online forums can provide understanding, shared experiences, and product tips. Manufacturers also send free samples and literature for trial.
See full discusison
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