This topic is about someone who has had to postpone their ostomy reversal surgery due to a few health challenges. They are dealing with the aftermath of chemotherapy, which includes neuropathy, balance issues, and a rib injury. Here are some insights and advice shared by the person:
- The surgery delay is actually a relief because they recently recovered from COVID and are still healing from a rib injury caused by a fall. The fall was due to balance issues after chemotherapy.
- They initially avoided taking hydrocodone for pain, but severe pain led to an ER visit. Now, they are taking the medication and doing breathing exercises as advised.
- A major concern for the surgery is whether there is enough rectum left to function properly after the reversal.
Additional questions and information include:
- They are experiencing persistent neuropathy, especially in the toes. Acupuncture and over-the-counter supplements haven't helped, and they are curious about what medications others have found effective.
- They regret not using "ice boots" during all chemotherapy infusions, as they only used them for one drug due to unclear guidance. They recommend future chemo patients use ice during every neuro-toxic infusion.
- They plan to start gentle balance exercises once their ribs heal. Currently, even small tasks like doing laundry are exhausting. They use a hiking pole for stability, and their son helps with chores.
- For footwear, they have switched to TOPO brand shoes with a wide toe box and minimal cushioning, which feel more stable than cushioned sneakers.
- They are trying a mushroom-based "coffee" drink and are open to anything that might help restore sensation and control in their toes.
Advice and insights shared by others include:
- Healing can be slower with age and after chemotherapy, so it's important to use prescribed pain medication when needed to avoid complications like pneumonia or a collapsed lung.
- For balance and neuropathy, try simple balance exercises supported by a counter, use hiking poles for walking, and consider wearing minimalist shoes with thin soles to improve ground feel.
- Medications that have helped others with chemo-induced neuropathy include Duloxetine (Cymbalta), which is described as a "game changer," and Gabapentin, often used alongside Duloxetine.
- A supplement option is Lion’s Mane mushroom powder, with a recommended dose of 2 grams per day. Start with a small dose to check for tolerance, as it can cause mild stomach upset initially. It may lower blood sugar and act as a mild blood thinner, so consulting a physician is advised. One person was able to stop taking Cymbalta after benefiting from Lion’s Mane.
- General cautions include allowing ribs to heal before resuming strenuous activities and not pushing beyond current limits, as gradual progress is safer.
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