This topic is about someone from Melbourne who is adjusting to life with a permanent colostomy, 77 days after undergoing an abdominoperineal resection (APR). They are finding it emotionally challenging but are thankful for the support they have found online.
Here are some helpful pieces of advice and insights for anyone in a similar situation:
1. The forum is a welcoming and safe space where you can ask any question. No topic is too personal or "gross" to discuss.
2. Emotional adjustment can be tough, but many people who have lived with a stoma for a long time are here to offer genuine support and understanding.
3. Reading through past discussions on the forum can help you anticipate common issues, like leaks, and learn effective tips before you encounter these problems.
4. Using humor can make the transition easier. For example, some people find it helpful to give their tumor a nickname.
5. Even those who have had a stoma for a long time still face challenges with confidence and emotions. Engaging in conversations with peers, whether publicly or through direct messages, can be very beneficial.