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Oct 20, 2025

Reversal Experience and Concerns with Ileostomy

Facing anxiety about an upcoming ileostomy reversal can be quite overwhelming, especially if you've had a tough journey leading up to this point. The thought of returning to the hospital after experiencing emergency surgeries and a long stay can understandably bring up feelings of fear and trauma. It's natural to seek out stories and advice from others who have been through similar experiences to help you make an informed decision. Here are some insights and advice that might be helpful:

1. Understand your medical background before making a decision. It's important to know the reason for your ileostomy, whether it's due to Crohn’s, ulcerative colitis, cancer, trauma, or another condition. Also, consider if your colon or rectum is still intact and if a J-pouch is being considered, as these factors can significantly influence the success of a reversal.

2. Assess your personal risk factors. Factors such as the extent of bowel damage, presence of chronic disease, prior radiation treatments, overall health, and age can affect the likelihood of a successful reversal. Generally, younger and healthier individuals with minimal bowel damage have better chances.

3. Have open discussions with specialists and consider getting second or third opinions. Understanding the probabilities and potential outcomes beforehand can help you avoid the disappointment of a failed reversal, which would require another surgery.

4. Acknowledge the psychological impact. It's common to experience anxiety or PTSD after emergency surgery. Many people have felt the same way but have still gone on to have successful reversals and return to normal function.

5. Consider staying with the ileostomy if you are managing well with it. Some people find comfort in sticking with what they know, as it can sometimes be less daunting than facing the unknown.

6. Learn from first-hand reversal experiences. For instance, one person shared that their reversal was done 6–8 weeks after the initial surgery, and they were discharged on the fourth day after passing gas and having their first bowel movement. They experienced some painful cramps, gas, and bloating as their intestines "woke up," but found these manageable and worth the outcome. A routine colonoscopy before the reversal confirmed complete healing, which they recommend pushing for. They also used a daily stool softener and Miralax to aid early healing. Choosing an experienced colorectal surgeon contributed to their smooth recovery. Adhesive allergies and the mental burden of having an ileostomy motivated them to reverse as soon as it was safe, and they were pleased with their decision three weeks post-operation.
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