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Nov 01, 2025

Soon to Be Living with an Ileostomy

Preparing for life with an ileostomy after cancer surgery can feel overwhelming, especially when you're facing so many unknowns. It's completely normal to have concerns about how this will change your daily life. Here are some helpful insights and advice to guide you through this transition:

1. Emotional & Mental Adjustment
- It's okay to feel anxious and have fears; everyone experiences this at first.
- You might go through stages of anger, frustration, and asking "why me?" Acceptance will come with time, patience, and practice.
- Be kind to yourself and take recovery one day at a time. Remember, the ostomy is there to help you survive and eventually thrive.

2. Pre-surgical Planning & Stoma Placement
- Meet with a WOCN/ostomy nurse and your surgeon to decide on the best spot for your stoma.
- The pouching area should be flat and away from scars, folds, and the navel to ensure good adhesion and prevent leaks.
- Use this time before surgery to educate yourself and gather necessary supplies.

3. Professional Support After Surgery
- In the hospital, a wound/ostomy nurse will teach you how to change your pouch. You may also receive home-care nurse visits and a follow-up after a month.
- Establish a relationship with a stoma nurse for ongoing support with any skin or appliance issues.

4. Product Selection & Samples
- Reach out to ostomy product manufacturers for free samples and try each brand to see what works best for your skin.
- Most companies have nurses available to offer advice over the phone.
- Check out videos on websites like Stealth Belt, Hollister, and Vegan Ostomy, as well as UOAA and Ostomy101.com, for demonstrations on pouch changes and accessory options.

5. Education & Resources
- Utilize the United Ostomy Association of America (UOAA) website and local support groups.
- Explore forums and Ostomy101.com for information on food, hydration, blockages, skin care, clothing, travel, exercise, and sex.

6. Technique & Daily Management
- Learn the correct technique for changing your pouch early on; many find it becomes quick and routine.
- Chew your food thoroughly and stay well-hydrated with water and electrolyte drinks to prevent blockages and dehydration.
- High-protein foods or protein drinks can help with general surgical healing.

7. Lifestyle Reassurance
- Many people with ileostomies have been living full lives for decades, working, traveling, swimming, and maintaining relationships. An ostomy doesn't have to limit your life.
- Mishaps can happen, but there are solutions for every problem, and this community is here to support you.

Remember, you're not alone in this journey, and there are plenty of resources and people ready to help you adjust to your new lifestyle.
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