Living with Diversion Proctitis (DP) after an ostomy can be a challenging experience. Diversion Proctitis is an inflammation that occurs in the unused rectal or colon stump left behind after a colostomy or ileostomy, especially when a full proctectomy, often called a "Barbie-butt" surgery, is not performed. Here are some insights and advice on managing this condition:
- When the anus is no longer used as an exit, the rectal stump can lose its regular nutrient flow, which may lead to deterioration.
- Symptoms of DP can include a feeling of needing to pass stool (tenesmus), bloody or mucous discharge, and a generally reduced quality of life.
- Many people with ostomies might think their issues are resolved post-surgery, but the rectal stump can still cause problems.
Additional insights and advice include:
1. It's common for surgeons to not discuss DP before surgery, possibly due to oversight, fear of causing extra anxiety, or because it seems minor compared to other surgical risks.
2. Some surgeons routinely check the rectal stump during follow-up colonoscopies and are ready to perform a completion proctectomy if DP worsens.
3. For self-care, using Calcium Alginate dressings can help stop accessible bleeding quickly. These are available in pharmacies or online, and only a small piece is needed directly on the site.
4. Daily suppositories have been helpful for some in managing rectal bleeding.
5. It's important to advocate for yourself by insisting on an evaluation of the stump if you experience symptoms. Be prepared for different hospital departments to possibly defer responsibility.
6. Emotionally, some people choose to avoid further investigations to prevent additional hospital stays, while others feel well-informed due to thorough risk discussions related to their specific situations.
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