This topic is all about finding or organizing travel, retreats, or social meet-ups specifically for people with ostomies. The idea is to connect with others who understand the unique experiences and challenges of living with an ostomy. Here are some helpful insights and advice for anyone interested in this:
1. The United Ostomy Association of America (UOAA) is a great resource in the U.S. for finding local support groups, meet-and-greets, and larger events. You can check their website for chapters and event calendars.
2. In the U.K., ostomy meet-ups are quite common and often organized by ostomy supply companies. Some people attend up to ten events a year.
3. Many U.S. cities have in-person support groups where manufacturers might provide free samples and even cover the cost of group dinners.
4. While distance can be a challenge, personal determination is key. If meeting fellow ostomates is important to you, be prepared to travel a few hours.
5. Although previous attempts to organize multi-day group trips have not always succeeded, there is still a lot of interest. Taking the initiative to plan and announce dates and locations is encouraged.
6. Social media platforms like Facebook and Instagram, along with the premium membership messaging feature on this site, are useful tools for exchanging contact information and coordinating gatherings.
7. Some activity ideas that have worked well for existing groups include:
- Brunch or holiday parties, such as a Christmas gift exchange.
- Outdoor activities like hikes; one member even completed 18 days on the Appalachian Trail with an ostomy.
- Hot-tub sessions using a Stealth Belt to secure the pouch, which have been reported as leak-free and pain-relieving.
8. When it comes to dating or socializing, some people prefer not to disclose their ostomy early in new relationships. Choosing venues with comfortable restroom access can help reduce anxiety about leaks or emptying.
9. To start a local group, find 3–4 interested people, pick a date, and others will likely join. Manufacturers might assist with venue costs or product giveaways if you reach out to them.
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