Topic Explanation: Longevity of Life with an Ileostomy
The discussion centers around the longevity and quality of life for individuals living with an ileostomy. The original poster has had an ileostomy for 51 years and is seeking information on how long others have lived with an ostomy and any conditions that may arise from having an ileostomy for an extended period.
Advice and Insights:
1. Longevity and Life Expectancy:
- Many participants have lived with an ileostomy for several decades, with some reporting over 60 years.
- Life expectancy for ostomates can be normal or even extended, as they often pay more attention to diet and health.
- A surgeon mentioned an average life expectancy of 20 to 25 years post-ostomy, but this was disputed by forum members who have lived much longer.
2. Health Conditions and Complications:
- Kidney stones are a common issue due to dehydration, as ileostomists lose a lot of fluids.
- Staying hydrated is crucial to prevent kidney stones and maintain kidney function.
- Some individuals have experienced blockages and hernias, which can require surgery.
3. Hydration and Diet:
- Drinking plenty of water is emphasized to prevent dehydration and kidney issues.
- Monitoring fluid intake is important, especially for those with restrictions.
- Proper diet and hydration can help maintain a normal lifestyle and prevent complications.
4. Quality of Life:
- Many participants report leading active and fulfilling lives, including traveling and working.
- Some have experienced a decline in energy levels, which they attribute to aging rather than the ostomy itself.
- Participants emphasize the importance of listening to one's body and adjusting lifestyle habits accordingly.
5. Community Support and Encouragement:
- The forum provides a sense of hope and encouragement for those new to living with an ostomy.
- Sharing personal experiences and longevity stories helps alleviate fears and provides motivation for others.
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