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Nov 05, 2011

Seeking BCIR surgery experiences after colon removal

This topic is about the experiences of people who have undergone a specific type of surgery after having their colon removed due to ulcerative colitis. The surgery in question is the Barnett Continent Intestinal Reservoir (BCIR), which is a modified version of the Kock pouch. The person who started the discussion had their colon removed and is exploring options for life after surgery, including the BCIR. They are seeking advice and personal stories from others who have had similar experiences.

Here are some insights and advice shared by others:

- Long-term outcomes can vary:
- One person had the BCIR in 1991 and experienced multiple fistulas, eventually returning to an external ostomy after 10 years of repairs.
- Others have reported over 20 years of satisfactory function with the BCIR, with minor issues like hernias and pouchitis, but nothing serious enough to revert to an external pouch.

- Comparing BCIR/K-pouch with an external ileostomy:
- Those who prefer the BCIR appreciate the freedom from an external bag, ease of physical activity, and convenience in professional settings.
- People who returned to an external pouch stress the importance of understanding potential complications, such as fistulas, hernias, and pouchitis, before making a decision.

- Typical intubation/drainage frequency:
- Most BCIR users report needing to drain 2–3 times a day, with up to 4 drains during heavy physical activity.
- Draining 4–5 times daily is considered higher than average and might be influenced by diet or high fluid intake.

- Due diligence before surgery:
- It's important to speak directly with past patients and ask detailed questions about the pros, cons, and daily management of the BCIR.
- Ensure the surgeon has experience and is using current techniques, as procedures and materials have evolved since the early 1990s.

- Alternative option: conventional J-pouch reversal:
- One person with a recent J-pouch encourages considering a reversal, noting that pain decreases after the first week.
- For early recovery, they suggest a diet of low-fiber foods, avoiding alcohol, tea, and coffee, and expect about 4–5 bowel movements per day, adjusting the diet to thicken the output.
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