This topic is about dealing with persistent morning watery leakage after having a subtotal colectomy and end-ileostomy. The person who shared their experience has been facing some challenges and is seeking advice and insights from others who might have gone through similar situations. Here are some helpful points and suggestions:
1. **Understanding the Cause of Watery/Mucus Leakage**
- If any part of the colon or rectum is still present, it might continue to produce mucus, which can leak, especially in the morning or at night. This usually decreases over time.
- Completely removing or surgically closing the rectum might help reduce or stop the leakage, although some minor seepage might still occur.
- If there is no colon or rectum left, consider that the moisture could be due to sweat.
2. **Practical Ways to Manage the Discharge**
- Use folded toilet tissue, a rolled-up "cigarette" of tissue, a sanitary pad with wings, or a few sheets of paper towel between the buttocks to absorb moisture and prevent the wet feeling.
- Many people do this regularly, especially at night, to stay comfortable.
- There is mention of a steroid medication that might reduce mucus, but no specific details are provided.
3. **Dealing With Blockages**
- Common triggers include high-fiber foods like nuts, raw vegetables, and fruit skins. Drinking plenty of water when consuming fiber can help keep things moving.
- At the first sign of a blockage, try drinking hot beverages like tea or hot chicken broth, doing vigorous movements such as jumping jacks or brisk walking, and gently massaging around the stoma.
- Many blockages resolve on their own, and hospitals typically manage pain and monitor until the obstruction clears.
4. **Reducing the “Bag Hanging” Sensation**
- Consider using a two-piece ostomy appliance and angle the pouch toward the pelvis instead of letting it hang straight down.
- Wearing underwear or specialized support garments over the pouch can help keep it snug against the body.
- There are commercial garment lines, like Ostomy Secrets, that offer tops, wraps, and underwear designed to support pouches discreetly.
5. **General Encouragement**
- Living with an ostomy can provide more freedom than dealing with uncontrolled Crohn’s or colitis, and maintaining a positive mindset can help with adaptation.
- Remember, you are not alone. Many people have similar experiences and have found routines that work for them over time.
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