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Dec 20, 2011

Seeking advice on rectovaginal fistula repair with colostomy reversal

This topic is about a person considering a complex surgical procedure to address a rectovaginal fistula, reverse a colostomy, and repair a hernia. The individual has been living with a colostomy since 2007 due to complications from childbirth and is now exploring the option of a gracilis muscle flap repair. This involves using a muscle from the inner thigh to close the fistula. The person is seeking advice and experiences from others who have undergone similar procedures. Here are some insights and advice shared by the community:

1. Surgeon Selection:
- It's crucial to choose a specialist in pelvic-floor or uro-gynecological surgery rather than relying solely on colorectal surgeons.
- Recommended centers include University College Hospital London, St. Mark’s Hospital in London, Johns Hopkins Hospital in Baltimore, Cleveland Clinic, Mayo Clinic, NYU Langone, and Vidant Medical Center.

2. Gracilis Muscle Flap Experiences:
- Surgery can last between 4 to 8 hours and typically involves both colorectal and plastic surgeons.
- Hospital stays range from 3 to 8 days, with some patients required to stay on bedrest for 7 to 21 days to protect the flap.
- Drains from the thigh or groin are common and usually removed 5 to 7 days after surgery.
- The most discomfort often comes from the inner-thigh incision, with numbness or pulling sensations lasting weeks to months.

3. Mobility and Recovery Timelines:
- Initial walking is often allowed on the first day but is discouraged due to significant leg swelling and limited mobility.
- Full recovery can take several months, and it's advised not to rush the healing process.

4. Ostomy Management and Reversal Timing:
- A temporary stoma is common, with durations ranging from 3 to 6 months, though some surgeons prefer longer.
- Some patients opt not to reverse the colostomy due to additional health concerns or fear of failure, while others proceed once imaging confirms successful repair.

5. Expectations of Success:
- Success is often found after referral to high-volume fistula surgeons, especially for those with multiple failed repairs.
- Fistulas caused by radiation are more challenging to repair, and some centers may not accept these cases.

6. Emotional and Practical Support:
- Joining support groups like "Living with a Colostomy" on Facebook can provide peer support.
- Keeping detailed medical records and seeking second opinions is recommended.
- Prepare for extended bedrest by arranging help at home, planning nutrition, and managing pressure areas.

The discussion did not mention specific commercial ostomy products or model numbers.
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