Topic Explanation
The forum topic is about seeking advice and experiences from individuals who have undergone bladder diversion surgery, where a bag is attached to the outside. The original poster is looking for insights on how this surgery affects daily life and any tips for living with it.
Advice and Insights
- Use the forum's search function to find information on urostomies.
- It's common to feel apprehensive about the surgery, but many individuals eventually feel well again after the operation.
- Trapped wind can be a challenge post-surgery, which may come as a surprise.
- Finding the right clothes to hide the pouch can be a concern, and some individuals opt for larger clothes tailored to fit better.
- Fatigue may be experienced post-surgery, and it's important to take breaks when needed.
- Voice concerns to the doctor before the operation, ensuring the stoma is positioned correctly for smooth appliance fitting and visibility.
- Meeting with an ostomy nurse before the operation is beneficial for learning about appliances and their use.
- After getting used to the new situation, life can resume as usual, including activities like traveling and sports.
- Seeking advice from someone who has had the operation and talking to a stoma nurse before the surgery can provide valuable insights and support.
- For incontinence and zero bladder capacity, using a bag may be preferable to wearing massive pads 24/7.
- UTIs can be a concern post-surgery, and cranberry juice is recommended by many for controlling infections and odor.
- Using a supportive pouch over the belt can help with bag support.
- Despite the challenges, many individuals express gratitude for being alive and emphasize the importance of staying positive.
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