The topic at hand is whether having an ostomy is considered a disability in England. This question arises from someone who has had a urostomy for over three years and is experiencing mild angina. They are seeking clarity on whether they can apply for Disability Allowance, as the information available seems to be conflicting.
Here are some insights and advice on this topic:
- The person had a 9-hour surgery and undergoes annual CT scans and check-ups, all covered by the NHS. Ostomy supplies like pouches, creams, and wipes are provided free of charge.
- They plan to consult Age Concern for advice on benefits and will share the outcome of this consultation.
From a United States perspective:
- An ostomy alone rarely qualifies for financial disability benefits. However, it is recognized under the Americans with Disabilities Act, which offers workplace protection and reasonable accommodation.
In the United Kingdom, regarding benefits and claims:
1. Many people with ostomies receive Disability Living Allowance (DLA) or its newer equivalents. The entitlement and rate depend on individual circumstances.
2. Some have received Incapacity Benefit by explaining the limitations caused by their ostomy, which can continue until retirement age.
3. Attendance Allowance (for those over retirement age) or DLA/Personal Independence Payment (for those under retirement age) may be claimed. A colostomy or urostomy is considered a legal disability due to incontinence.
4. Success in claims often depends on how forms are completed:
- Describe worst-case scenarios, such as night-time leaks, needing help with bed linen changes, frequent bag changes, and skin care.
- Include any related conditions like pain, hernias, fatigue, or depression.
- Seek help from welfare-rights advisers, Age Concern, Citizens Advice, or similar organizations when applying.
5. If a claim is refused, consider appealing or re-applying, as different adjudicators reassess cases and may approve them on subsequent attempts.
Regarding work and daily living:
- Some employers offer accommodations for ostomates, such as reduced duties or flexible schedules.
- It is possible to work part-time while receiving disability benefits, with earnings supplementing rather than replacing the benefits.
General tips:
- Keep all medical documentation and letters from surgeons or GPs that support any functional limitations.
- Emphasize that managing supplies, stoma care, and potential accidents requires time, privacy, and sometimes assistance.
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