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May 02, 2012

Swollen Stoma and Infection After 19 Years with Ileo 2.0

This topic is about someone who has had an ileostomy for 19 years and recently experienced their first infection around the stoma area. The infection started with swelling and hardness above the stoma, which quickly became red, hot, and very painful, making it difficult to stand or sit normally. After being admitted to the hospital, they received treatment that included a drainage tube, IV antibiotics, and morphine. Imaging also revealed gallstones, but the doctors considered the stoma-site issue to be a general infection. The person is seeking advice from others who might have experienced similar swelling and how to prevent it in the future.

Here are some additional details and questions they shared:

1. A week before going to the hospital, they experienced severe gas pains, likely related to the gallbladder, which caused persistent hardness above the stoma area.
2. By the time they needed to change their appliance, the lump had grown to the size and shape of a large navel-orange segment, about half an inch above the stoma edge.
3. A CT-guided drainage tube was used for 6 days, requiring two 10 cc saline flushes.
4. The IV antibiotics led to severe diarrhea and a weight loss of about 6 kg (approximately 14 lbs) in just 4 days.
5. They are dealing with ongoing issues, including a planned laparoscopic gallbladder removal, dialysis, and temporary skin damage from needing to change their one-piece convex system every 2 days instead of the usual 7.
6. Currently, they are at home, with the stoma still slightly swollen, but their skin is healing, and their hydration and nutrition are improving.

As of now, no advice or insights have been shared by others.
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