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Jun 02, 2012

Metamucil - A Game-Changer for My Ileo Output and Sleep!

This topic is about how Metamucil has been a game-changer for someone dealing with high-liquid ileostomy output. After struggling for years with watery output and frequent hospital visits for rehydration, the introduction of Metamucil significantly improved their condition. Here are some helpful insights and advice shared by others who have faced similar challenges:

1. After starting Metamucil twice daily, the output became thicker and more formed, reducing the frequency from hourly to about twice a day. This also improved sleep, allowing for 5-7 hours of uninterrupted rest.

2. A month later, the person continues to feel great, sleeping 6-8 hours and emptying the pouch about three times a day. They use Metamucil Chews and Taffy twice daily, resulting in little to no liquid output.

3. Many people find relief when their output thickens and frequency drops, which greatly improves their quality of life.

4. Some alternative or additional medications to slow output include:
- Lomotil (diphenoxylate/atropine)
- Imodium AD (loperamide), with some taking up to 8 tablets a day
- Cholestyramine powder (e.g., Questran)
- Octreotide (Sandostatin) injections for very high output

5. Fiber and absorbent products can help manage output:
- Metamucil (psyllium) twice daily has been successful for many.
- Eakin Gel sachets can be placed in the pouch to absorb liquid and reduce emptying frequency.

6. Hydration is crucial:
- Regular intake of 2 bottles of Gatorade plus 8–10×16 oz (about 3–5 liters) of water daily is recommended to prevent dehydration.
- Flavoring water with squash or cordial can help reduce very loose output compared to plain water.

7. Dietary tips to firm up output include eating mashed potatoes, chips (French fries), and timing meals strategically:
- Fast from lunchtime if planning an evening outing, empty the pouch before leaving, and eat before bed to keep the pouch quiet until morning.

8. In hot weather, such as Indiana or Texas summers, fluid loss can increase, so extra vigilance with fluids and anti-diarrheals is advised.

9. Before considering surgical options like reversal, it's important to exhaust all medical and dietary measures. Some people cannot undergo further surgery and rely solely on bowel-slowing strategies.
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