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41,452 members
Jun 26, 2012

New to the Site and Seeking Confidence Post-Ileostomy

This topic is about the journey of rebuilding confidence and managing anxiety about leaks, a year after having an ileostomy. The person feels skilled in daily care but is hesitant to dive back into normal activities like job hunting, dining out, or staying overnight somewhere due to a fear of pouch leaks, also known as blow-outs.

Here are some points and advice shared by others:

1. It's common to feel anxious about eating out, drinking socially, or even playing bingo because of the fear of leaks. You're not alone in this feeling.

2. If you're experiencing bleeding around the stoma, adjusting the size of the hole in your appliance can help. However, if the surrounding skin becomes red, inflamed, and painful, it might be worth consulting a healthcare professional for advice.

3. Concerns about clothing showing the pouch are normal, especially when you have a special role like being a chief bridesmaid. Finding suitable clothing that makes you feel comfortable and confident is key.

4. Using public toilets can be daunting due to concerns about odor. Many find that using disabled restrooms offers more privacy and comfort.

5. Giving your stoma a nickname, like "Fred," can help in dealing with the ups and downs, making the experience a bit more personal and manageable.

6. Remember, many people with an ostomy take more than a year to feel comfortable in public. Confidence will grow with time and experience.

7. Blow-outs are a part of life with an ostomy. If one happens, try to see it as a minor inconvenience. Clean up, wash your clothes, and move on. Keeping a sense of humor can be very helpful.

8. Staying connected with other ostomates can provide support, tips, and a space to share both jokes and frustrations. This community can be a great source of comfort and encouragement.
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