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Aug 30, 2012

Seeking Advice on Ostomy Pouch Brands and Finding a Doctor in Tallahassee

This topic is about someone who is new to living with an ostomy and is seeking advice on ostomy pouch brands and finding a suitable doctor in Tallahassee, Florida. They currently use a Coloplast SenSura Click 2-piece system and are exploring different products to improve their experience. They also need guidance on finding medical professionals for follow-up care. Here are some helpful tips and insights:

1. Locate qualified help:
- Search for an ostomy (ET/WOC) nurse through local hospitals, ostomy supply stores, the United Ostomy Association of America (UOAA) chapter, or use the “Find an ET Nurse” tool online.
- Home-health programs often include post-surgical ostomy nurse visits that can help assess fit, troubleshoot leaks, and suggest suppliers.

2. Explore multiple manufacturers and request free samples:
- Visit websites of manufacturers like Convatec, Hollister, Coloplast, and Cymed. They offer sample programs so you can try different systems, baseplates, moldable rings, deodorizers, and more.
- Attend appliance fairs sponsored by local UOAA chapters for hands-on comparison and free product samples.

3. Example systems other users find successful:
- Some users have success with a Cymed one-piece pouch combined with a Hollister moldable ring (similar to an Eakin seal), with a change interval of about 6 days and minimal problems.

4. Peer experience vs. professional advice:
- Real-life feedback from fellow ostomates can be invaluable, as product representatives and some nurses may lack personal ostomy experience.
- Persistence is key: keep testing until you find the pouch, baseplate, and accessory combination that works best for you and reduces leakage.

5. Finding a doctor in Tallahassee:
- For surgical or complex medical issues, look for a colorectal surgeon or general surgeon with ostomy expertise. UOAA chapters and hospital referral lines can provide recommendations.
- Routine skin or appliance concerns can often be managed by a certified ostomy nurse, which may reduce the need for frequent doctor visits.
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