This topic is about a person with Ehlers-Danlos Syndrome (EDS), a condition that affects connective tissues, who has had a colostomy due to a bowel perforation. They are concerned about future complications and are looking for doctors in Canada who have experience with both EDS and ostomies. They also want to connect with others who have had similar experiences.

Here are some helpful insights and advice:

1. The person has reached out to EDS organizations but hasn't found anyone willing to share their personal experiences of living with a colostomy after an EDS-related perforation. They are still looking for these firsthand accounts.

2. It might be useful to visit the Ehlers-Danlos Support U.K. website. This organization has a network of specialists worldwide and could help in finding surgeons or gastroenterologists who are knowledgeable about EDS.