This topic is about managing the ongoing challenges faced by someone living with an ileostomy, particularly focusing on issues like output consistency, leakage, and skin irritation. Here are some helpful tips and advice shared by others who have been through similar experiences:
1. Output Consistency and Diet
- Watery output is more likely to cause leaks, while moderate to thicker output can help reduce leakage.
- Try eating 4-6 small meals throughout the day instead of one large meal. You can have your last meal as late as 6-8 p.m. if managed well.
- Foods that can help thicken output include applesauce, bananas, marshmallows, oatmeal, potatoes, rice, toast, peanut butter, yogurt, crackers, and cheese. You can also use commercial stool-thickening sachets in your pouch.
- To thin thick output or relieve early signs of blockage, consider warm tea, fruit juice, broth, cooked vegetables, or melon.
- Chew your food thoroughly and be cautious with foods that might cause problems, like nuts, popcorn, sweet corn, mushrooms, and raw hard vegetables. Also, be mindful of high-gas foods and drinks.
- Metamucil (psyllium) can be used in personalized doses to thicken output, but avoid using too much to prevent blockages.
- Stay hydrated, as dehydration and kidney stones are more common in those with an ileostomy.
2. Night-time Management and Pouch Choice
- Consider using a larger-capacity or high-output pouch at night.
- Try to sleep on your back or the side opposite your stoma, and wake up once or twice to empty the pouch if it’s one-third full.
- Vented pouches can help release gas and reduce ballooning.
3. Reliable Appliance Systems
- Some users find success with Convatec Sur-Fit Flexwear, Coloplast systems, Cymed MicroSkin, SALTS, WELLAND, and B. Braun products.
- Individual trial and error are necessary, as some systems work better for certain people.
4. Accessory Products and Skin Protection
- Use barrier rings or seals like Brava, Eakin, or Hollister, and warm them before use for better adhesion.
- For irritated skin, apply stoma powder, dab off excess, and use a medical adhesive spray to create a protective crust.
- Layer barrier sprays or wipes, drying between coats, to reduce skin irritation.
- Use adhesive paste or moldable rings for extra sealing around the stoma.
- Elastic barrier strips or tape extenders can help secure wafer edges, especially during physical activities.
- For wet or irritated skin, some find success with wafers containing Manuka Honey for healing.
5. Practical Habits
- Empty your pouch 15-20 minutes after eating and don’t let it get more than one-third to one-half full.
- Rinse the pouch with water at each emptying to keep output away from the filter and reduce odor.
- Hold the wafer firmly for a minute after applying to ensure it sticks well.
6. Where to Get Help and Samples
- Request free samples from manufacturers to try different products.
- Visit wound/ostomy clinics for reassessment of stoma size, wafer fit, and product options.
- Join local ostomy support groups for peer support and product tips.
7. General Encouragement
- Many people achieve leak-free wear times of 4-5 days once they find the right combination of wafer, ring, and pouch.
- Regular, balanced nutrition and patient experimentation are key, as your body will adapt over time.
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