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Aug 14, 2009

Struggling with Colostomy Care with Cerebral Palsy

This topic is about someone who has recently received a colostomy and is finding it challenging to manage due to their cerebral palsy. They are experiencing frequent leaks and feel that typical medical advice doesn't fully address their unique needs related to mobility and positioning. They are seeking advice, equipment suggestions, or shared experiences from others in a similar situation.

Here are some helpful tips and insights:

1. Consider using a pouch that supports a belt. One person found success in reducing night-time leaks by switching to a Coloplast Alterna one-piece pouch, which includes built-in belt tabs.

2. Try an elastic support garment. A soft cotton/elastane "belly band" can help keep the pouch snug against the abdomen. It stretches as the pouch fills and prevents gaps when clothing shifts.

3. Use a cleaning aid to make maintenance easier. A cleaning system from Ostyclean.com was recommended by another person with cerebral palsy, as it simplifies the cleaning process.

4. Regularly consult with an ostomy nurse. In some areas, specialist nurses can visit your home to help troubleshoot leaks and fit issues. It's worth checking if such a service is available in your area.
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