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Aug 22, 2009

Starting an Ostomy Support Group in Eastern Michigan

This topic is about a person in Port Huron, Michigan, who has been living with an ostomy for ten years and is eager to start a small, friendly support group for others in the area. The goal is to bring together ostomates from Sarnia to the Metro-Detroit/Ann Arbor corridor for casual meet-ups over coffee, where they can share experiences, discuss products, and talk about the everyday challenges of living with an ostomy. Here are some helpful insights and advice for anyone interested in joining or starting a support group:

1. Many ostomates in the Detroit area and surrounding suburbs face the same issue of not having local support meetings that are easy to travel to. In the meantime, they find support through:
- Online forums and discussion boards dedicated to ostomy topics.
- Meetings for general inflammatory bowel disease (IBD) conditions like Ulcerative Colitis or Crohn’s, when available.
- Professional counseling or therapy to help prepare for or adjust to life after surgery.

2. Those who are newly post-op often find traveling difficult while they are still healing. They prefer virtual meetings or gatherings that are close to home during this time.

3. When private messaging on forums is limited due to non-paying memberships, people suggest using major social networking sites to exchange contact details or "friend" each other to arrange meetings.

4. A visiting Wound, Ostomy, and Continence (WOC) nurse can be incredibly helpful for solving problems and choosing the right pouching system. However, insurance may limit the number of visits. New patients should:
- Take notes on the tips and advice given by the nurse before the visits end.
- Try out different pouching systems to discover which one works best for them.

5. Many members find that their quality of life improves significantly after surgery. They can enjoy meals and activities without the constant need for bathroom trips. However, adjusting to life with a pouch takes time, and having peer support can make this transition easier.
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