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Jun 02, 2013

Ileostomy Reversal Success Story - A Must Read!

This topic is about a positive experience with an ileostomy reversal, shared to encourage others who might be considering the procedure. The originator had a challenging journey, starting with an emergency ileostomy due to severe health complications. After a long wait and overcoming fears of potential complications, they successfully underwent the reversal. Here are some insights and advice shared to help others:

- The originator experienced significant pain post-surgery, managed with a PCA pump. Bowel function returned gradually, with one loose bowel movement on day two, none for a week, and then a regular pattern of one formed stool per day.

- They emphasize the importance of individual experiences, noting that fear almost prevented them from proceeding with the reversal. They credit daily prayer for their positive outcome.

- The originator had serious health issues, including sepsis and lung damage, which required thorough testing before surgery approval. They offer to answer questions privately and stress that the worst-case scenario would have been keeping the ostomy bag.

Advice and insights from the community include:

1. Success rates and hope:
- Many report good to excellent results after reversal, with bowel movement frequency improving over time.
- The rectum adapts and can hold more as time goes on.

2. Surgeon and timing considerations:
- Choose an experienced colorectal or specialty surgeon and consider a second opinion if unsure.
- Allow full medical and nutritional recovery before surgery; some waited 6–15 months or longer.
- Even high-risk cases can succeed with the right team.

3. Diet after takedown:
- Start with easily digested foods like mild white fish, mashed potatoes, and yogurt.
- Reintroduce foods slowly and in small amounts, increasing if tolerated.
- Avoid problem foods early on, such as large amounts of red meat and greasy items.

4. Products that help with frequency, bulk, and consistency:
- Metamucil capsules can slow output and add bulk.
- Citracil/Citrucel fiber supplements help thicken output and aid transition.
- Loperamide (Imodium) can reduce frequency, with dosage adjusted individually.
- Miralax or other laxatives may be used to prevent constipation.

5. Supportive therapies:
- Arnica tablets and castor-oil packs may reduce bruising and discomfort.
- Acupuncture is mentioned for faster recovery.

6. General coping tips:
- Expect night-time accidents early on; they decrease over time.
- Prayer or meditation can aid recovery and provide courage.
- Be prepared for temporary setbacks and arrange home help if needed.
- Monitor hydration and electrolytes, especially with high output or diarrhea.

7. Decision-making guidance:
- Weigh personal quality-of-life goals against surgical risks; the ostomy bag is a valid option if reversal fails.
- High-risk patients should seek specialized testing before deciding.
- Emotional readiness is as important as physical readiness; seek out positive stories to balance any negative ones.
See full discusison
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