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Jun 11, 2013

Ileostomy surgery - Pain and recovery time?

This topic is about what to expect in terms of pain and recovery after ileostomy surgery. The person asking the question is preparing for surgery to remove parts of their large and small intestines, resulting in a new stoma. They are understandably anxious about the pain and recovery process. Here are some insights and advice shared by others who have been through similar experiences:

1. Pain and Hospital Stay
- You can expect significant pain in the first few days after surgery. Typically, the hospital stay lasts from 10 to 14 days until the ileostomy starts functioning. A spinal anesthetic can help with quicker pain relief.
- Full recovery is gradual. It may take 6 weeks to 3 months to resume most daily activities, around 6 months to feel more "normal," and up to a year for complete healing.

2. Home Recovery and Activity
- The first two months can be the most challenging. Avoid heavy lifting to prevent hernias.
- Energy and strength can return more quickly with a positive mindset and by following your surgeon’s advice. Some people have returned to full-time work after 8 weeks, even if they felt weak before the operation.

3. Managing Output
- The output from an ileostomy is frequent and watery, so staying hydrated is crucial. Aim to drink at least 2 liters of fluids daily.
- To slow down or thicken the output, consider using prescription LOMOTIL, thick Greek yogurt, or marshmallows.
- Introduce new foods slowly and be cautious with high-fiber foods like raw salad, nuts, and corn to avoid blockages.

4. Pouching Tips and Equipment
- Expect a constant flow, and changing the pouch is easiest first thing in the morning before eating.
- A two-piece Convatec system can last up to a week, though you might need more frequent changes if you swim or use a hot tub.
- A WOCN (wound-ostomy-continence nurse) can provide valuable guidance on fitting, troubleshooting leaks, and establishing routines.

5. Medical Checks
- Before leaving the hospital, ensure that your small intestine is functioning properly and that there is no postoperative ileus.
- Ask detailed questions about diet progression, activity limits, and pouch care before discharge.

6. Emotional and Social Support
- A positive attitude, faith, and a strong support network can significantly influence your recovery.
- Many people have returned to active lifestyles, such as cycling and sailing, within months, showing that life can almost return to normal.
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