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40,880 members
Jul 01, 2013

Seeking Connection and Support After 40 Years of Chronic Illness

Topic Explanation:
The discussion topic "Seeking Connection and Support After 40 Years of Chronic Illness" revolves around an individual who has been managing chronic illness for four decades. The person has an ileostomy and a history of ulcerative colitis (UC), which led to a J-pouch and subsequent complications including chronic pouchitis and pelvic abscesses. Despite these challenges, they have achieved personal milestones such as having children and a career in healthcare. However, due to recent health issues, they are unable to work and are seeking new ways to find purpose and reinvent themselves. They are reaching out for support, connection, and shared experiences from others who understand their journey.

Advice and Insights from Replies:
1. Welcome and Encouragement:
- Multiple users welcomed the original poster (OP) to the forum, emphasizing the supportive nature of the community and the benefits of sharing experiences and tips with others who understand the struggles associated with ostomies.

2. Personal Experiences and Support:
- One user shared their own recent experience with an ileostomy, highlighting the emotional challenges and the importance of support groups in coping with the situation.
- Another user reflected on their long-term experience with an ostomy, acknowledging the mixed feelings but also appreciating the life it has enabled them to lead.

3. Advice on Reinvention and Acceptance:
- A user suggested reflecting on past desires or dreams as a starting point for reinvention, implying that it might not be too late to pursue these interests.
- Another emphasized the importance of accepting the ostomy, despite the dislike, by sharing their personal improvement in quality of life post-surgery and their ability to resume normal activities like working and golfing.

4. General Encouragement and Positivity:
- Users encouraged keeping a positive outlook and staying engaged with the community for mutual support and to share both the hardships and lighter moments of living with an ostomy.
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