This topic is about managing Crohn’s disease after having ileostomy surgery. The person who started the discussion is curious about how others with Crohn’s and an ileostomy handle preventive medications like Humira, Simzia, or Remicade. They are particularly interested in knowing how many people continue with these medications and when or if they restart them after surgery.

Here's a bit about their journey: They have a 10-year history with various medications, including oral drugs, Remicade for three years, and a brief period on Humira, which unfortunately led to vasculitis. Due to this and other challenges like loss of insurance and severe flares, they eventually had an ileostomy 1½ years ago. Since then, they have not been on any Crohn’s medication and are worried about ongoing health issues and further bowel loss.

Additional details include recent medical tests showing persistent inflammation and other health concerns, as well as upcoming consultations to decide on new Crohn’s therapy.

Here are some insights and advice shared by others:

1. Many people report being medication-free after ileostomy or colostomy and staying symptom-free by using vitamins, baby aspirin, or hydration strategies.

2. Some continue or restart prescription therapy:
- Humira has been restarted by some when symptoms returned.
- Colazol and sulfasalazine are used by some for Crohn’s and arthritis.
- Remicade has helped some but caused severe side effects for others.
- Cimzia is used with no major side effects reported.
- Imuran is taken daily by some to maintain remission.
- Lialda is used by some patients and their family members.
- Low-dose Cipro and Pepcid are used long-term to control flares.

3. Some doctors prescribe medications only "as needed" to avoid drug tolerance, while others question the preventive value of certain drugs after bowel resection.

4. Crohn’s can affect the entire GI tract, so ongoing GI follow-up and possible biologic use are advised even after an ileostomy.

5. Joint pain and arthritis are common, and a rheumatology referral or pain control medications may be needed.

6. Vitamin D deficiency is frequent, so regular blood testing and supplementation are recommended.

7. Annual "colonoscopy" through the stoma is possible and routinely done.

8. Diagnostic tools like the PillCam are praised for full GI visualization.

9. Non-drug approaches include diet-based remission, hydration, small frequent meals, exercise, and maintaining a positive attitude.