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Sep 12, 2009

Waiting for Surgery - Seeking Advice on Options

This topic is about making a significant decision between two surgical options for someone who has almost no bowel control. The choices are between having a colostomy, which is considered not a major surgery, and undergoing a complex operation to transplant muscle from the leg to reconstruct the anal sphincter. The person is seeking information to help make this decision.

Here are some helpful insights and advice:

1. Get expert opinions:
- Consult with more than one highly qualified colorectal surgeon, as their skill and experience can vary greatly.
- Recommended centers for consultation include the Cleveland Clinic and Johns Hopkins Hospital in the USA.

2. Evaluate the muscle-graft option carefully:
- Ask each surgeon about the documented success rate of sphincter reconstruction procedures.
- Be aware that infections and graft failure can occur; some have experienced repeated grafts that did not succeed.

3. Quality of life with an ostomy:
- Many people report that a colostomy or ileostomy greatly improved or completely restored their freedom, removing the constant worry about finding bathrooms and fear of accidents.
- One person described life after an ostomy as "1,000% better" and would not trade the pouch for natural continence.

4. Emotional adjustment:
- There may be an initial psychological impact, but most people adapt quickly, finding the stoma to be more of a "nuisance" than a major problem.
- Home-health nurses and ostomy nurses can provide valuable support in learning how to change pouches and manage daily care, making the transition easier.

5. Surgeon’s mindset matters:
- Some surgeons see an ostomy as a last resort and may discourage it, while others specialize in techniques that preserve continence. Choose a surgeon whose approach aligns with your personal goals.

6. Practical tips if choosing a colostomy:
- Once you learn the routine, managing the appliance becomes straightforward.
- Modern pouches allow for an active lifestyle, including travel and work.

7. Overall guidance:
- Confirm the exact diagnosis and rule out other treatable causes of incontinence.
- Consider surgical risks, age, previous surgeries, and your desired lifestyle when deciding between a graft and a colostomy.
See full discusison
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